Hi Janet,
I had a recurrance of TM that had me back in the hospital in May. It
was 5 months after the original occurance of TM in Dec. I was sick with
a virus at the time though, and whilst it did knock me about badly, and
I lost a lot more movement in my legs; it still wasn't as severe as the
first one. I also recovered from that more quickly; (maybe because I
knew what to expect this time, and wasn't in a state of horror and panic
about what had happened to my body; thinking maybe brain cancer or some
terrible thing may be wrong with me). It also was the time I was
thankfully given Baclofen to help with the spasticity, so maybe that had
an effect on how quickly I picked up from it; maybe it was the IV
steroids that helped too; because I wasn't given any of those drugs at
all when the first attack struck me down. Not entirely sure I picked up
from it more quickly than the first, but that's what happened; thank
goodness. I was tested for MS for oligoclonal bands; but it came up
negative; so it must have been a recurrance of the TM.
I'm also in dread of having another attack. Both the original attack,
and the subsequent one in May both occurred when I was sick with a
flu-like virus, so I'm really scared of getting the flu or any virus
again, and tend to try to keep away from people in the fear I may pick
up something. It's silly I know, but something that does concern me.
I hope you are feeling OK, and whilst I feel a bit silly in saying it,
(because I also worry about that too) - try not to worry, and just
concentrate on looking after yourself really well, resting when you
need to, and just taking one day at a time. (That's what I need to do
too; so I'm saying that to myself as well as to you).
:-)
All the best, and take care,
Kathryn
