Trudy wrote:
"...most nueorologist that he knew were pretty nutso :) "
Trudy,
I can confirm this! My last neurologist 'fired' me because I refused
to get a nerve biopsy
and a spinal tap. I was going to her to get a confirmation that
I also have Carpal Tunnel
Syndrome. She is not the neuro who dx'd my TM. That neuro
lost my private disability
benefits for me when he wrote the wrong thing on a medical form.
Back to my last neuro...
She refuses to give me or my doctors the results of my EMG that showed
Carpal Tunnel.
That is ILLEGAL, according to HIPAA laws, but I don't feel well enough
to fight her
right now. Even the hand surgeon I saw last week can't believe
all this and said he has
referred many patients to this neuro's office. He is sending me to
a different doctor
for a new EMG this week.
I have to add that I saw a neurologist years ago at Columbia-Presybterian
Hospital, who
was a great man. Dr. Sciarra was his name, (he has sadly passed
away since), but he
actually sat and talked with me for about an hour after he examined
me. I also have
not met Dr. Kerr at Johns Hopkins, but have corresponded with him,
and feel that he
is a great doctor and truly concerned about us TM'ers. I hope
to get to meet him
someday.
So, not all neuros are bad, but, unlike a plumber, they hold our lives
in their hands, and
I expect them to have a high standard of care.
Kevin
Trudy OGILVIE wrote:
Jude, I was so glad you brought this up. Since I switched over from Kaiser to Medicare in Jan. and had to get all new doctors I cannot tell you the frustration and depression I am going thru. Is it me??? Am I the wierd one??? I can't tell you how happy I was when my Orthopedic doctor said that most nueorologist that he knew were pretty nutso :) My neurologist who is supposedly one of the best, couldn't be less interested in me if he tried! He's changed my meds and when I tried to reach him due to problems with Baclophen he just told the nurse to have me increase the dosage. Big mistake, it made my legs too weak, I fell and was in a wheelchair for the next 3 months! When I went to see him, we were to discuss the results of my MRI's. Now I'd been waiting anxiously for the results. He didn't have them!!!! When he found them, he called me at 9:30 on a Friday night and told me I was improving. What the hell does that mean?? I actually said, "So we're talkiing about a miracle here cause I know the damage has been done!"He was supposed to compare the Jan. MRI's with the Aug. MRI's .... never happened! He was considering putting me on MS meds. He cancelled my next appointment and now its been two months so I have decided to "self-medicate". The Lyrica is not working for me! I am now once again looking for a new neurologist. I have my last appointment with him tomorrow O.k..... I'm done complaining (for now)
No-one can truly understand what we go thru. The fear, the anxiety, the pain, the unknown.
I did have my bone density test done, my Internist gave me a prescription for the test.
Well it is a beautiful autumn day here in Virginia and I know I have so much to be thankful for so I will think about the "good things" and since I believe that there is a greater, more loving power who is in charge of my life I shall now go get an ice cold beer and watch some football.
Trudy
Worrying does not empty tomorrow of its troubles; It empties today of its strengths.
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED], [email protected]
Subject: Re: [TMIC] Be Careful When Exercising
Date: Sat, 28 Oct 2006 10:50:15 EDT
