Pam,
I am so sorry to hear that you are ill. My neuro, rheumatologist and internist have all told me that if I get a fever, bladder infection, a cold - anything - I must go to the hospital right away. I also take Imuran, along with a myriad of meds and have a "very compromised immune system" - no kidding.... My rheumatologist told me to get a flu shot and a pneumonia shot. He said if I got the flu I would be in the hospital, most likely pneumonia would follow "and I can tell you that this usually results in death" on the other hand if I don't get the flu shot I risk another attack on my spine"  -  "you choose" - and a whole lot of other happy stuff. To date, I've done nothing. My whole family is scared to come near me for fear they will pass a germ on to me. So here I am - just relaxing and taking each day as it comes. I can't live in a bubble.
I would very much like you to Please get well! and #2 Please keep us informed on how you are.  We will think only positive things and pray that it does not affect your spine
Please take care - Hugs
Linda (Eagle ID)
 
 
----- Original Message -----
Sent: Monday, October 30, 2006 1:44 PM
Subject: [TMIC] Re: tmic-digest Digest V2006 #245

NATALIE,
              YOU CERTAINLY PUT IT IN THE CORRECT PERSPECTIVE. TM IS RARELY HEARD OF. MY DOCTORS THANK GOODNESS DO RESEARCH ON IT AND THEY SAY ITS A VERY COMPLICATED DISEAE.
ALL WE CAN DO IS LIKE YOU SAID HANDLE IT THE BEST WE CAN.WE HAVE EACH OTHER AND THAT IS WHY THIS SITE IS SO VERY IMPORTANT. WE LEARN FROM EACH OTHER AND WE HOPE AND PRAY THEY FIND SOME SORT OF CURE OR MEDS THAT WOULD HELP LIKE MS.
                         PAM
 JUDE, YOUR NOT CRAZY AND YES I GET FURIOUS WHEN THEY DO NOT AGREE. MY REHAB DOC IS GREAT AND MY INTERNIST TAKE MORE INTEREST IN ME THAN MY NEURO OR NEUROLOGISTS DO. I ASK THEM FOR ANYTHING I NEED TO KNOW BEFORE THE SO CALLED SPECIALISTS. MY NEUROLOGIST TOLD ME TO AVOID INFECTIONS OR I COULD GET A RELAPSE.
I ASKED MY INTERNIST AND MY REHAB DOC AND THEY SAID WHENEVER I GET ILL A FEVER IT SEEMS LIKE MY SPINE GETS ATTACKED FROM MY WEAK IMMUNE SYSTEM. I TAKE IMURAN TO HELP MY IMMUNE SYSTEM.
DAN JUST GOT OVER A 3 DAY VIRUS WITH FEVER. I NOW HAVE IT BUT ITS WORSE AND WILL PROBABLY LAST LONGER THAN 3 DAYS.GO FIGURE.
I JUST TRUST MY INTERNIST AND REHAB DOCTOR MORE.
THEY BOTH GOING TO CALL ME LATER TODAY. I AM HOT COLD HAVE A TEMP SORE THROAT AND I KNOW THEY WILL DECIDE WHAT MEDS TO GIVE ME. I TRY NOT TO THINK ABOUT IF IT AFFECTS MY SPINE.
WE ALL HAVE TO GO DAY BY DAY JUDE.
                    BEST WISHES PAM

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