Oh I forgot to mention that you can't take any opiate pain medications while on 
LDN but you can take everything else.  If you have MS you can't take most of 
the disease modifying drugs with LDN.

 
 
Sharon --from Arizona TM 1997 to MS 1998 
  It's not easy taking my problems one at a time when they refuse to get in 
line.  ~Ashleigh Brilliant
  http://health.groups.yahoo.com/group/MSersLife/




----- Original Message ----
From: Natalie Boyles <[EMAIL PROTECTED]>
To: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
Cc: [email protected]
Sent: Tuesday, November 28, 2006 9:14:43 PM
Subject: Re: [TMIC] Question two

Hi,
 I sent the link to the pharmacy, because that is the pharmacy I used to get 
LDN, well actually 50mg tabs of Naltrexone. I have been trying to get a 
prescription for it from a doctor since August, but I have not had success. My 
family doctor is still reading up on it, the neuro I saw this summer could 
possibly be waiting for his hospital to finish their testing on rats(lucky 
rats). In the meantime, I went on line last week and bought LDN without a 
prescription. And, yes, it is a prescription  drug.And, no you do not need a 
prescription at riverpharmacy.com.  I have read on the web where people have 
been using LDN since at least 2004 for neurological problems and other 
illnesses. No one came and told me either, I just found it out, by luck. 
  
 --- No, You cannot get it from just any pharmacy, sorta. LDN stands for Low 
Dose Naltrexone. Naltrexone is a drug for addiction - alcohol or drugs. It 
comes in 50mg doses. With LDN you use only 1.5mg/ml - 4.5 dose. So, to get the 
low dose it must be compounded by a pharmacist. Or, you can do like I do and 
take the 50mg tab and dissolve it in distilled water and measure out with a 
syringe(the 50mg tab you can get it from any pharmacy) . This is the URL for 
the LDN homepage:  http://www.lowdosenaltrexone.org/   This has the information 
you need to understand all this. Also, below I have put another link. This site 
also will help you.Someone who knows much more about this than I did mention 
LDN on the list a month or so go and she did not get much of a response.  
  
 I did not write about this any earlier to the TM list, as I have only been 
taking it since last week.  The first night I took it ( it is taken once a day 
before bedtime), I felt so good I could not believe it. My spasms were gone and 
I could feel my body (I am numb and stiff all of the time).. I could not run 
around the house, but I actually felt like I might be able to give it a good 
try. Usually I am not sure if my feet are next to each other or on top of each 
other when I lie in bed, but I could after the first dose. Most of the good 
effects did not last more than a few hours. THe 2nd night I became agitated, 
hyper from the dose. I did not take any for 2 days. The next dose I took was a 
lower dose and ws fine. I have been slowly improving and raising my dose to 
3mg. I did not say anything before as I did not want to give any false hopes to 
 anyone.Nor did I what to get my own hopes up. But, people with MS and many 
other illnesses have been having unbelievable results
 with this. Of course, there are those who do not have success.
  
 LDN is a FDA prescription drug, but there have been no clinical studies here 
in the USA for its use for humans with other illnesses (except for Crohn's and 
one presently going on for Fibromyalgia in Mechanicsburg, PA). Since it is so 
cheap it is taking and has taken a long time for any group to get around to 
testing it for diseases other than  addiction.Drug companies would lose big 
bucks if it were found that LDN worked better than their expensive drugs. But, 
an approved FDA drug can be prescibed for another illness if you can get a 
doctor to do it. All this is explained on LDN homepage. I guess many doctors 
are waiting for human trial results. Have to ask the doctors that question. 
  
 I do not know why we have not been hearing about this on the TM list. All I 
care about is that I have had a chance to try it. And, I did want to let other 
list members know about it.And, I did want listers to hear about it from 
someone they know, like me so you might give it a look. I just am not a doctor 
and I do not want to play one. So, I guess I did not give much info my first 
email. It sounds too good to be true, but it seems for many it is like a 
miracle. I hope if any of you try it you have good results. Sorry if this is 
long, hope it makes some sense. I care about all of you and maybe this will 
help some of you. 
 God Bless,
 Natalie B
  
  http://ldn.proboards3.com/index.cgi?  -- This is a LDN message board. On this 
page you will find more links.   There is also a low dose naltrexone list on 
yahoo groups you can join. 
 

 
 On 11/28/06, [EMAIL PROTECTED] < [EMAIL PROTECTED]> wrote:          LDN (Low 
Dose Naltrexone)  ?  What is it?
  
 I see that several of you are having good results, less pain and less banding, 
but why am I hearing of it all of a sudden, and why, Natialie, was your doctor 
so reluctant in prescribing it to you?  Is this drug something one can get over 
the counter?  If so,  why, the doctor in the first place?  Why give us the name 
of a specific pharmacy?  It seems as though it might be found in any good drug 
store.  
  
 Of course, now I want to try it because, like Lyrica, a few people feel better 
when taking it.  Then, after a month or so the same people are going back to 
their previous medications.  Like I did a month or so ago.  I get so confused 
and don't know what to think...  
  
 Peace To All,
 Jude
  
  
  
  





 




Reply via email to