Jude, I agree with you wholeheartedly about discussing meds with the pharmacist. They actually take the time to answer your questions... While my $300 an hour neuro gets annoyed when I walk in with a sheet of paper full of questions. He takes the sheet of paper and starts writing on it, like I'll ever be abe to read what he wrote. Sometimes I feel like I'm being used as a "test" case. He told me to stay on Lyrica even when I said I didn't like the results, he said to use both Neurontin and Lyrica.. Now some people say that is not a good combination. I was trying to cut back on the Neurontin because I thought it was truly affecting my memory... approx. 2400mg. every day. He said no to LDN.. not enough info out there! I now take 1800mg. but have problems with the pain ARGH!!!! I take a percocet or vicodin when the pain gets too much...
I would be interested in knowiing what pain-killers (Yeah right ..don't you love that name! ) people on this list take and how much. I know we're all pretty unique.... Since there is some disagreement as to whether it's TM or MS. I now take a shot of Copaxone every day... So... my daily "cocktail" is 1800mg neurontin, Copaxone, and one pill of either percocet or vicodin (what is the difference between the two) as needed and only when I'm home and staying home! Apporximately 3 or 4 times a week. Oh and Zetia for Cholesterol....
My next question is Vitamins!!! Vitamin B??? how much.. good or bad for TM'ers.
Well, Jude, you've made me rethink what I'm putting in my body.... and it scares me.
Trudy (In Northern Virginia on a snowy Sunday afternoon in front of a fire watching football )
Worrying does not empty tomorrow of its troubles; It empties today of its strengths.
From: [EMAIL PROTECTED]
To: [email protected]
Subject: [TMIC] Too many meds
Date: Sun, 21 Jan 2007 12:14:55 EST
When I get settled in with my new Internist and decide if I want to stay with her, I want to go to a drug rehab place and get myself taken off the majority or all of the pills that have been prescribed to me since the onset of my TM.I am sick and tired of putting all of these chemicals into my body and really wonder what the total effect they are having on my body and my brain. I wonder whether they are making me feel better or even worse than I would feel without them.Peace,Judl
