Dear Janet,
I understand it might not be for everyone as we all have different
reactions to the meds we take, just as none of us has all of the same
degree of TM. That being said in 9+ years of having TM no drug has
helped me with the banding in my right leg as much as Lyrica. I noticed
the improvement within minutes of my first dose 1 1/2 years ago. I now
take 450 mg per day and have had no ill side effects. Lastly this drug
was prescribed to me by Dr. Kerr specifically for the banding, numbness
and pins and needles!
Rob in New Jersey
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From: Janet Dunn [mailto:[EMAIL PROTECTED]
Sent: Sunday, February 11, 2007 10:54 AM
To: [EMAIL PROTECTED]
Cc: [email protected]
Subject: RE: [TMIC] Re: banding
Hello
One of my biggest symptoms is the banding. Right under my right ribs,
and often down my legs. I have been told it is part of the TM. There
are days though when I wonder. The banding is sometimes so intense it
takes my breath away. It also is quite bad around my knee, and my foot.
As an aside, I am just coming out of a week of "quality bed rest time"
as I apparently picked up a virus that got my TM to fire right up. Is
this the beginning of another progression or does anyone know? The
bright side to the whole episode is that the doctor on call that I saw
actually is experienced with TM and jumped right on the symptoms I had
and placed a call to a neurologist. (We are a bit isolated) She is
treating a female patient with TM and understood a lot of the other
symptoms I have. So, that is 3 of us in this town now.
Janet
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: February 10, 2007 7:08 PM
To: [EMAIL PROTECTED]
Cc: [email protected]
Subject: [TMIC] Re: banding
Randy wrote about his doctor: "He doesn't believe that anything can be
done about the banding. His only comment is that it is just another
symptom. "
I, too, have never gotten clear answers about this. My pains are
minimal, but I've occasionally experienced the tight 'banding' on the
lower right section of my rib cage. However, more often, it's less
severe, and just feels sore as though I'm recovering from being kicked
in the ribs. It's usually worse later in the day. But even more often,
I feel a 'sore' type of pain just under my right ribs - almost like a
cramp, towards the front - center of my body. For a long time, this was
the only pain I experienced as everything else involved was totally
numb. I even noticed it for a couple of days before the TM/paralysis
hit.
For the better part of a year, the neuro barely paid attention to my
question, saying it was just part of the TM. Then the last time I asked
her, she said I'd have to ask my regular doctor, as it had nothing to do
with TM! (I interpret that as: 'I really have no idea and don't
remember how I answered the last time you asked.')
One of my concerns is that I may be ignoring something else that isn't
part of TM. (I think it's in the area of my gallbladder, but then they
checked everything in the ER when I first went in paralyzed w/TM, and I
would think they would have caught it if it was a gallbladder problem.)
Does my description just sound like 'banding', or different from what
you folks experience?
Sally
