Hi,
I'm like you. I monitor but don't often post.
My TM came on slow. It allowed me to be diagnosed when it was still
progressing. I only experienced blatter problems for about two weeks. I did
have to use a catheder for a few days then things slowly improved. As far as
urinary problems, I am about 98% recovered.
Not sure if my relatively short time with problems is applicable to your
condition, but I did recover.
Take Care,
Rick
From: [EMAIL PROTECTED]
To: [email protected]
Subject: [TMIC] straight cath
Date: Mon, 16 Apr 2007 15:22:06 EDT
Hello everyone,
I have not logged in recently but I read as much as possible. But I do have
a
question that I hope someone out there has an answer.......one I want to
hear!
But first let me recap....
I was first diagnosed with TM after being in Temple hospital for over 6
weeks
back in Sept of 2006. I recently visited Johns Hopkins in MD and was told
by
Dr. Greenburg that he was not sure that I had TM. I might have an AVM.
Arterial Vascular Malformation. Temple hospital thought that as well but
could not
prove it so they diagnosed me with TM. Dr. Greenburg wants to do another
angiogram in June to see if Temple missed the AVM. I was told by Dr.
Greenburg that
there are two ways to determine TM. One is with an MRI and the other is
from
the fluid from a spinal tap. Both were done at Temple Hospital and both did
not
show TM.
I am numb from the waist down to my toes and must straight cath at least 4
times a day.
Now to my question. Has anyone had problems urinating and then had the
bladder come back and was able to urinate on their own again? Lately I
have been
able to urinate a little on my own but it is psoriatic. Is this a good sign
or
just a fluke?
Thanks for letting me vent.
Mark
Marlton, NJ
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