Bernie, Be assured of my prayers for your family. Your TM family is here for you! Life is not fair. and who can understand the why of suffering, but your faith will get you through this... keep in touch with us.. write to us whenever you can and whenever you need to vent...
Trudy _____ From: L T CHERPESKI [mailto:[EMAIL PROTECTED] Sent: Sunday, April 22, 2007 11:04 PM To: [email protected]; Bernard Pelow; Wayne Rabalais Cc: TM List Subject: Re: [TMIC] OT - need your prayers and help please Bernie I am so very sorry that you are going through so much. You are very much in my prayers. Please take care of yourself, as well. Blessings Linda ----- Original Message ----- From: Wayne <mailto:[EMAIL PROTECTED]> Rabalais To: [email protected] ; Bernard <mailto:[EMAIL PROTECTED]> Pelow Sent: Sunday, April 22, 2007 5:55 PM Subject: Re: [TMIC] OT - need your prayers and help please OMG,Bernie,My prayers are with you and your girls. I can not imagine how you keep on going. But please keep the Faith. ----- Original Message ----- From: Bernard <mailto:[EMAIL PROTECTED]> Pelow To: Dad <mailto:[EMAIL PROTECTED]> Sent: Sunday, April 22, 2007 11:00 AM Subject: [TMIC] OT - need your prayers and help please Hello family and friends, I know I have not been on line in a long time, please forgive me my absence. But things have not been going well in our family at all for quite a while now. I wrote you a while back and told you briefly how both my daughters are sick, well now I can tell you what seems to be the end story of all of it. My youngest daughter Sara, has endometriosis, it took them almost 5 years to figure it out. First they said it was all in her head, then that she was just a 'drug seeker'; then a doctor had enough belief in her that he ordered testing on her female reproductive parts. They found endometriosis, and since then they have done surgery twice, to no avail. She is now in a pain management program for life, or a complete radical hysterectomy... so sad. And she did want to have children one day.... She has a month to decide whether she wants to be on the pain medicines all her life or have the procedure done. It is a hard decision for her to make, but she is an adult now, so it is hers and hers alone. She is listening to all sides and will figure out which way she wants to go, but she is leaning towards the procedure as she has watched me go through all of this pain management crap most of her life. She was 3 when all of my stuff started, so she has seen it all through me. My oldest daughter Laurie, has hyperthyroidism and thyroidtoxicosis. They finally figured it out after about 3 years, multiple emergency room visits, etc. Initially they told her it was just "female problems" causing her symptoms! When they found out 3 months ago (only after she had to be admitted into the intensive care because of difficulty breathing and a very high heart rate - over 200 beats per minute), they tested her and found the hyperthyroidism and thyroidtoxicosis, then they decided to do radiation treatment, they said because the thyroid was so large. So they put her on a crap load of medicines, and day before yesterday we find out that one those drugs has damaged her liver and she now has hepatitis (but only a mild form at least). They told her not to take any more of that medicine, to stop immediately, which totally freaked all of us out. Without that particular drug, her thyroid would start producing mass amounts of the chemicals that could kill her, in a matter of minutes if it were bad enough. So yesterday she had to go to the ER again because of the migraine headaches and eye pressure pain, and an ER doc got pissed as hell and got hold of her endocrinologist and endocrine surgeon (who did not want to do surgery initially....because the thyroid was so large.). Anyhow he got them in conference call, and he told them "if I send her home she will be dead in a couple of days". So he finally forced them to get their proverbial shit together, and she is scheduled for surgery to remove the thyroid on May 1st... the surgery that is still so dangerous to do,, but it is the only option left now. She will continue on her prescribed medicines, including radiation stuff taken orally, and including the one that has caused damage to her liver, but since it is only for 10 more days, the damage will be minimal. This is a very very risky surgery, but it is the only option left for her, so I am asking for all of your prayers, energy, or help from whatever higher power you happen to believe in... I rule no one out! And after the both of them have their respective surgeries, they will both have to be on different hormone replacement supplements the rest of their lives. So please keep them in your thoughts and prayers.... and me too, as I am a complete basket case at this time. With Laurie not being able to work, what little finances I get is not enough to pay for food, bills, my prescriptions, her new ones, etc... My electric wheelchair broke, and is in the shop for at least a month, so I am back in my manual chair. Which means my pain and spasticity is through the roof, and all of this other on top of it. My brain is overloaded and I am in a constant state of pain, anxiety, or depression; sometimes all at once over all of this. I am taking Klonopin right now for the anxiety, but it doesn't seem to be helping at all. I am taking everything one second at a time, and keeping the faith... my faith in my belief system, but like I said before I will rule nothing out right now... all help will be greatly appreciated. Thank you all. And I do hope that life is treating you better than it is us...... Blessings and Peace, Bernie in Texas
