Larry,
  It amazes me that dr.'s where able to diagnose your TM 30 years ago.  Can I 
ask what state your lived in?  What type of dr. back then was knowledgeable 
enough to diagnosis it?  30 years is a longgg time for TM - wow...  I've been 
in chronic pain for neck and back pain for 20 years.  I have never gotten use 
to pain.  I do realize if you get your mind off your pain; it is helpful.  One 
learns all kinds of tricks and trades just to ease the pain.  Thanks, Natalie

Larry Throne <[EMAIL PROTECTED]> wrote: 
      


    My legs throb, burn and ache 24/7, and it has only gotten worse over the 
years. I have taken just about everything and none of them really ever 
eliminate the pain & discomfort. I think I have just gotten used to it. That 
along with the constant fatigue and back/trunk pain have all stayed mostly the 
same. It used to leave me very depressed which helped me develop a dependence 
on narcotics and even alcohol. I stopped drinking or taking any pain killers or 
benzodiazepines 18 years ago. As I said, I was never able to find anything that 
worked for me but I have been taking cymbalta and that has helped with the 
depression. After living with TM for over thirty years I have also begun to 
experience age related problems. Arthritis in my hands and shoulders as well as 
loss of muscle strength & control have continued to plague.  But Oh, well! All 
I've even known to do was keep on going. I go slower than most people and it 
takes me longer to accomplish many task. But I keep doing
 as much as I can. I have lost a lot of ability over the last ten years but so 
have most people my age. It's frustrating to know there are things that I could 
do but can no longer muster the strength or stamina to master. But I keep on 
going. Don't give up! At some point, I was able to look behind me and say, hey, 
I survived! 
  Larry in Oklahoma where it is absolutely beautiful today!





    Larry Throne, MSW

    
---------------------------------
  From: natalie mizenko <[EMAIL PROTECTED]>
To: Transverse Myellitis <[email protected]>
Subject: [TMIC] Pain
Date: Sat, 12 May 2007 11:43:54 -0700 (PDT)

I have moderate to severe pain in my feet 24 hours a day.  They tried tons of 
drugs while I was at Baylor Rehab. to get it under control.  Many nights I 
couldn't even sleep & still up at 8:00 to 4:00 to do all the exercise groups 
and training they had.  Exhausted I was indeed then...but they didn't like you 
missing a course.  Very intense training.  Anyway, who else has burning pain 
like this in their feet all the time?  It really never, never leaves me.  I was 
checked on an MRI for MS cause my pain was so severe.  Dr. said my pain was out 
of the norm to be as severe as it was but she believed it was real.  Natalie    
 
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