Natalie, I was diagnosed with TM about a week after I had flulike symptoms. I was out of state, attending a wedding reception, when I felt a very sharp pain in my neck and left arm. I immediately told my husband I need to go to the hospital. By the time we made it to the elevator, my legs gave out, and I slumped to the floor, unable to breathe. I was at the hospital in less than 20 minutes. By the time I got there, I could only move my left foot. I was in intensive care on a ventilator. The neurologist at that hospital diagnosed me with Guillain-Barré syndrome. The other doctors were not in agreement with him. They said I did not have all the symptoms. Six days later, I was flown back to Michigan where I continue to stay in intensive care . After more MRIs and spinal tap, I was diagnosed with Transverse Myelitis, two days after I got there. I received five sessions of plasmapheresis, after which I got back movement of my left leg and partial movement of my left arm. My right side is still totally paralyzed. I have all the other wacky symptoms such as unable to detect sharp from dull. I can't tell how hot things are but cold is painful. I have nerve pain in my legs, feet, arms and hands. I have numerous other symptoms such as banding, loss of bladder control, etc. I am classified as a C4 quadriplegic. I have a family member that acts as my caregiver, along with my husband. I have to have someone with me 24 hour a day. My insurance doesn't cover the cost of a caregiver. It is a constant battle trying to get the things that I need. Yes, I am in a wheelchair. I think it's amazing that the young lady was able to live on her own. If I just had to use of my hands, I can live on my own as well. I know she is truly an inspiration. There aren't very many quadriplegics who are able to live on their own. I go on the quadriplegic-paraplegic message board also, because I can identify more with the quads than with the TM board members. There are many TMer's who are quadriplegics. I am still trying to get more therapy and hopes that that will help me some. Pray for me. Naomi C-4 quad since July 2, 2005
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