This is a subject that I have not seen debated in the five years I have been
a member of this exclusive club of amazing, diverse people brought together
by a common problem...TM.
I recently received an email from someone who has been on the list quite a
while. This person has troubles just like the rest of us and we help one
another when we can, but I only tonight found out that they are in extreme
pain
and at times can only sit for a few seconds at a time. Yet, they take any
amount of time they can handle to use their knowledge to educate us and
promote
dialogue between us, in spite of being racked by pain.
This person is one of the "walking wounded" and was, I thought, in pretty
good condition. Tonight, I learned that conception has not been true...and I
find myself amazed to find the depth of their disability.
Now, I am wondering how important it is for us to put on a happy face and
keep our infirmities to ourselves rather than getting honest and sharing our
limitations with the possibility of connecting with someone else, especially
new members in need of knowing that they are not crazy and other people have
the same problems that they do?
I believe that it is possible to maintain a positive attitude while humbling
ourselves enough to show others on the List the true person we are. There
are ways to share our pain, frustration, loss, etc. without sounding like a
whining baby.
Who believes that it is important to put our honest personage out there?
Does it help others? Does it help ourselves to talk about things? Or does
it
serve others better to be stoic about our disease? I'd really like to
know...
I love you all,
Jude T3 to T8, Complete para with no b or b control,
and not a lot of hope of ever walking again.
"Our present troubles are quite small and won't last very long. Yet they
produce for us an immeasurably great Glory that will last forever"
2 Corinthians 4:17
NLT
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