What ever you do, stay flat on your back as long as you can. After my first one no body told me to stay down and I reached to the end of the bed to get something and Bam! I thought someone shoved a hot ice pick in my brain. That was over thirty years ago and I still remember that pain! Other than that, I had several others over the next few weeks and even the next few years. I think I have had 8 or 9 total and none of the others were painful at all. Mostly discomfort.
I don't know why he insist on one now, I would think a MRI would make a better diagnostic tool?
Good luck though. Larry in Oklahoma where I am feeling better. It's amazing what a couple of rounds of cipro will do for you
Larry Throne, MSW
From: Wendy <[EMAIL PROTECTED]>
To: "'TMIC List'" <[email protected]>
Subject: RE: [TMIC] from Gary
Date: Mon, 25 Jun 2007 22:23:33 +0200
Hi Gary:
The spinal tap wasnt so bad. Just be sure to drink plenty of water afterwards to minimize a headache. I did have a bad headache for two or three days, but it was worth getting some answers.
Just my two cents .
Wendy in NJ
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Tuesday, June 26, 2007 4:15 AM
To: TMIC List
Subject: [TMIC] from Gary
Thanks to all who gave an input about fatigue. I went to my neurologist today but did not accept a prescription at this time. I think I'll try some of the non-prescription suggestions including trying to rest more. I do work full-time and clean our church for three hours twice a week plus keep up a house.
There is another issue about which I would like some thoughts from others:
While in the hospital three years ago the diagnosis was TM. I was never referred to the neuro who made the diagnosis as far as follow-up. I just went to my primary physcian who just said there is no treatment. After two years I asked if he would refer a neuro and he did.
Well, the neuro was flabbergasted that I had no follow-ups so ordered spinal and brain MRIs and the spinal was the only on the showed the "old" lesion--no change in two years.
I had another brain MRI last week and today was told no lesions.
However, the neuro still won't accept firmly a TM diagnosis and wants me to have a spinal tap because if it is positive I can take monthly IV's to help prevent any further "damage".
He said he hopes I have just had an isolated incident brought on by a virus but, of course, won't say that is the case so wants the spinal tap but won't "twist my arm" but let him know and he will order it.
So, has anyone had anything similar happen? What would you do? A spinal tap doesn't sound fun. Could it create further problems?
Sorry to be so wordy.
Thanks,
Gary in Michigan
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