Hi, When I first went into the hospital 9/05 the doctors didnt know what
the heck I had. So they started me on IVIG. They thought I might have
Guilliame Barre Syndrome. I was on it for 5 days - 3 bottles a day. Very
fine
hospital (teaching hospital) on Long Island in New York. The entire
neurological staff could not give a diagnosis - They thought this would help if
I had
GBS - I was on high dose steroids too. I was fully covered for this, havent
paid one medical bill in the nearly 2 years but of course I am on Medicare
and AARP as supplementary insurance. No one has since suggested that I go on
this treatment again and I have seen many other neurologist since then,
including going to the Cleveland clinic. Conclusion by most of them is either
a
spinal cord stroke or TM. It all ends up as spinal cord damage anyway.
HOpe this helps.
Stay well, Rosalie
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