Hi Mindy, I don't post often and I should be more active but I get caught up in other things and by the time I get to email, I'm overwhelmed. Anyhow, I got ADEM in 01 and it paralyzed me at T7. You are fortunate but still have the after affects as everyone else does. Lyrica is fairly new and proves to be good for neuropathic pain. I love it and used to be on neurontin. I see a pain specialist and if you are having any sort of pain issues, it might be a good idea. That is what they are trained for.
Welcome, Stacy ----- Original Message ----- From: Lawrence King<mailto:[EMAIL PROTECTED]> To: [email protected]<mailto:[email protected]> Cc: Lawrence King<mailto:[EMAIL PROTECTED]> Sent: Tuesday, September 11, 2007 11:14 PM Subject: [TMIC] my introduction to the group Hello everyone, I guess I’m ready to introduce myself. I just got the results of my 3rd MRI and the evidence clearly supports my June 25th 2007 TM diagnosis. My attack happened around the 7th of March 2007. It started with numbness and tingling in my legs for a few of days with the sense that a couple of times I thought my legs might give out on me. I blamed it all on the fact that my time spent on the computer had quadrupled the same week and because I had a lumpectomy (not cancerous!) scheduled on the 15th of March. Began to feel a tingling sensation when I tipped my head down a few days before surgery and blamed it on the lack of sleep and the stress and fear of surgery. Didn’t notice much beyond the pain and bruising of having a ¼ cup of breast tissue scooped out for the next week but when that pain subsided I felt a continuous sense of shivering or buzzing and an electrical shock down to my finger tips and toes every time I tipped my head down with excessive tingling down my left arm. We now know the name for this symptom is called Lhermitte’s sign. Did not get to see a Neurologist until May1. At first the surgery department was blamed for giving me a “stinger” neck injury while under anesthesia. Then an MRI revealed a mass or lesion at the c4/c5 level, MS, tumors and TM were all considered. A lumbar puncture did not show evidence of a tumor, cancerous or otherwise but proteins associated with an attack of the myelin sheath were found. MS was dismissed because of my age (46) and absolute absence of lesions in my brain. My slow onset, extenuating circumstances and lack of dramatic symptoms made for a drawn-out diagnosis. I’ve never had walking difficulties nor many of the other issues TM survivors face and after reading these posts for the last few months I think I have no right to complain even though electrocuting yourself every time you tip your head down is no fun, found Lyrica on my own and asked my doctor for it but I’m wondering if there is something better I’d also love to hear if anyone else has had Lhermittes sign and if their symptoms improved over time? Mindy the Artisan Mindy King www.chairweaver.com www.mirthworkscreations.com
