That's interesting that you only take the Amantadine 2X a day for 5 days a week. I was told 2X a day period. It did work great for 2 months but it's like my system started to reject everything. First the Amantadine started giving me flu like sysmptoms - headache, sick to my stomach, ackey thoughout my body, coughing, etc. I stopped the Amantadine and within 48 hours, everything stopped. Then 2 days latter, the problem with the tens pads started - big hives in some spots and a rash in most of the spots. I'm now peal the gel pads off and use personal lubricant and paper tape on the pads. So far so good. My neruo put me on the provigil which I've been on for the past 3 days. Eventhou, I take 100mg in the morning around 9 a.m., I can't fall asleep until 2 or 3 in the morning and don't wake up until 9 or 10 in the morning. I just hope that doesn't go on. I just might stop the provigil, and use l-carnitine and an amino acid capsule. They helped even before the Amantadine. Thank you for the info. Prayers and thoughts to you and yours, Candy K. -----Original Message----- >From: "Butcher, Bernie (S&FS)" <[EMAIL PROTECTED]> >Sent: Sep 14, 2007 10:15 AM >To: cakalley <[EMAIL PROTECTED]>, transversemyelitissupport <[EMAIL >PROTECTED]>, tmic-list <[email protected]> >Subject: RE: [TMIC] Question - Spinal Stimulator > >Hi Candy >Yes, I tried Provigil and it seemed to work great sometimes & other >times, nothing (although my insurance paid zero for it - I got some >samples from my MD). Then my neuro put me on Amantadine - initially it >worked great, my legs felt lighter. I take it twice a day, five days a >week & I think it helps. > > >BERNARD BUTCHER > >-----Original Message----- >From: cakalley [mailto:[EMAIL PROTECTED] >Sent: Thursday, September 13, 2007 3:29 PM >To: transversemyelitissupport; tmic-list >Subject: [TMIC] Question - Spinal Stimulator > >I just returned from my Nuro. The amantadine after nine weeks, was >giving me terrible flu like symptoms. He gave me 4 weeks of provigil. >Has anyone used provigil? > >My tens pads had caused a rash everywhere I put the pads. However >without the tens, my spasms and cramps had returned with a vengance! >My Neuro had 2 suggestions, use the tens but go see an allergerist to >see if there is some special creme to control the rash OR have an >operation for a permanent spinal stimulator. >My question is has anyone had the spinal stimulator? If so, what was >the recovery time? How does it work? >Prayers and thoughts for all, >Candy K. > >Candy K.
Candy K.
