Ann you Rock!!! I too have had this for five years and am so sick and tired of neuros that just don't really care or listen.. I have decided to go to Georgetown, it's a teaching hospital maybe, hopefully someone will listen.
your#1 is right on. I've go to use that. #2 a definite 3,4,5 I don't have but my torso is a wooden block with shooting pains all around it.. How is your fatigue?? any help with that?? Are you talking about the April 2007 Journal?? Please let us know how it all goes! Ann I live in Northern Virginia, Fairfax County just outside of Washington, D.C. Argh!! Va. Beach is 3 hours from me.. Good luck in your Bridge tournament.. Do us proud :-) Trudy _____ From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, October 15, 2007 8:27 PM To: [EMAIL PROTECTED]; [email protected] Subject: Five Year Plan The medical community has had me for the first five years. I have decided that I am not wild about their plan since obviously there is none so am devising my own. My neuro is so busy that he will see me only twice a year so I am going to Charlotte, NC to see a new neuro that a friend of mine knows. Am busy making a list of all of my problems which to some will see little but to me I want them better. If any of you have any suggestions, feel free to become a part of my medical community. l. Feet feel like marbles with duct tape wrapped around them. (Am finding that message helps a lot) 2. Legs feel like wooden solders. (Message helps} 3 Pain right side and hip.. (Heating pad only thing that helps) 4. Right buttocks not happy. (no suggestions Maybe loose weight. 5 Banding under boobs. ( does not happen often but is getting worse) 6.Have you ever seen a little balloon inside a big one? That is how my right side feels sometimes if this makes sense. I walk with the cane and am finding I am hurting more when I walk. If I could stay seated all the time I would be a happy camper I am taking 2400 gabapentin and Tramadol when needed. Have tried baclofen and cymbalta but could not take either. My plan right now is to try everything that was suggested in the Spring newsletter. Pain doctor is being quite helpful with this. This is an interesting article if you all have not seen it Medical approach to the management of neuropathic pain. Am trying acupuncture.. Jury still out on this. Trudy in case you read this I am coming to Va. Beach in November for a bridge tournament. Know you live in the eastern part of Virginia but am not sure where. Do you happen to be in Va. Beach? Ann in Roanoke (I am usually never chatty.) _____ See what's new at AOL.com <http://www.aol.com?NCID=AOLCMP00300000001170> and Make AOL Your <http://www.aol.com/mksplash.adp?NCID=AOLCMP00300000001169> Homepage.
