*On Monday I had my three month neuro check. Everything seems to be going
well---for now. One thing that we discussed, is the fact that so far, they
don't know how many rituxan treatments an individual can take before
reaching a saturation point. I asked him what the plan will be once I reach
that point, and he said it would either be monthly plasmapheresis, or
mitroxantrone. On November 15th, I go back to Pittsburgh to the
neuro-opthalmologist, and also for my blood tests---BCell subset panel,
complete CBC and differential, and another NMO IgG test for the Mayo. He
said that at this point, they are no longer given the actual titres for the
NMO IgG, but rather just a *positive* or a *negative*. He would like to see
the actual numbers for comparison, as would I. Guys, I am thankful to be
doing fairly well at this point, but am so tired of all of the treatments,
tests, etc. The thing is, I will relapse without them, and I certainly
don't want that to happen. The thought of blindness and paralysis again,
terrifies me. Even with the treatments, there is no guarantee and people
are still relapsing despite aggressive measures. I just wish that I could
get my head to the place that it needs to be to cope with the implications
of this disease. *
**
*Grace *
