Gerry
Sorry to here that you have such a hard time. From expirience I had the same
problems with the shaking in bed. I noticed when on the evening you keep your
legs warmer ( mine are always cold) even when they feels warm enough, the
muscle spams in bed are much lesser. Cuddle up to your wife, because of the big
difference in tempeture can also make it worse. We can only do that from half
spring, untill half autum. I wrap a blanket around my legs in the evening to
keep them warm. Look out for draft, that cools down the most in house.
Especialy in spring, the first nice days and then the windows open for fresh
air. Those are my baddest times.
Wim from Holland> From: [EMAIL PROTECTED]> To: [email protected]> Date: Mon,
25 Feb 2008 16:19:32 -0500> Subject: [TMIC] my story> > HI; My name is gerry;
someone asked me for my "story" why i do not know > anyway here goes. I am 60
years young. I first contact mt at the age of 21. > I paralysized from the lung
cage down. including a 2month stay in icu I was > in the hospital for
approximately 5 months. I had to learn to walk again > etc. three years later I
had another episode this time lasting two months. > full recovery until 2001
when the symtoms returned. I now have constant pain > 24/7 I have no
circulation to speak of My brain can not g9ive my body > correct temperatures.
sometimes I feel cold when I am actually quite warm > and sometimes I feel warm
when I am actually cold. This event is certainly > brought to the forefront
when I cuddle up to my poor wife in the middle to > the night. and wrap my cold
hands around her body. since last Saturday I > have slept but 4 hours. I get
these muscle spasms which hurt like hell > pardon the expression. There is
nothing to be done for them . I take quinne > but it doesn't seem to help.
These last from a few minutes to 6 hours as it > did last noth. soemtimes I get
five or six a night. I take wellbutrin for > depression,gabapentine for pain
and a whole bunch of othere pills to help me > walk. Yes I am fortunate that I
can still walk . Every step is pain galore. > I use a cane but have a walker
and wheelchair for the very near future. Last > week I was diganosed with ITP
ablood cell disorder whereby my white blood > cells are killing each other off.
Next Monday I will be enteing the hospital > for chemo , radiation and a bone
marrow transplant. Oh my life is far from > dull. Every day brings new
challenges, new adventures,. Every morning I pray > for strenght. Every day I
try to accomplish something whether its laundry > preparing evening meals or
just cleaning up the apartment. we have a cat ; > Astray I picked up .She feels
right at home. She sleeps at the foot of the > bed. I love cooking; barbequing;
walking; Yes I force myself to walk and > when the weather is bad I walk along
the corridor sometimes climbing up and > down the stairs. but most of all I
love my wife. it is scary but she reads > my mind. She is my caregiver; my
soulmate. I don't know what i would do > without her. I thank God almighty for
sending here to me.I too will need > your prayers for next week. many thanks.
gerry> >
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