My son Cole has TM.
He was 6 months old, it will be 7 yeasr for him on the 15 of march. Cole is
paralyzed from the chest down. He has autonomic dysreflexia and osteoporosis
all because of TM.
I kinds stay in the background.If you have any questions please ask.
Wendy
----- Original Message -----
From: "Tracey L. Black" <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>
Cc: <[email protected]>
Sent: Monday, March 10, 2008 10:19 AM
Subject: RE: [TMIC] Another unidentified becomes identified!
Rita:
WELCOME!!! I personally have not been "inflicted" with TM, but my
daughter has. She was 11 at the time and is now 14. She had her
anniversary on 2/1 (3 years). I think she is probably the youngest
person that we talk about on this site. I basically stay involved on
this site b/c I want her and the rest of our family to know what her
future might bring. She has been very lucky, she doesn't have any where
near the issues that most on here do and I believe that is due to her
young age.
Don't feel embarrassed to ask ANY type of question on here. Everyone on
here is very knowledgeable and will answer whatever questions you have.
Again, Welcome!
Tracey L. Black
Certified Insurance Service Representative
Hockley & O'Donnell Insurance Agency
Phone - 717-334-6741, x 29
Fax - 717-334-3414
Thank you for providing information to us. Please beware that no
coverage is bound and no change to your insurance program is confirmed
until verified by a licensed agent during regular business hours. If you
do not hear from us within 1 business day, please re-contact us in case
your information has not been retained.
-----Original Message-----
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Saturday, March 08, 2008 4:25 PM
To: tmic-list
Subject: [TMIC] Another unidentified becomes identified!
My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM
Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus
I had 3 weeks prior. With some people introducing themselves I thought
it was time I did to. I have read your emails and received a lot of
helpful information. So, hello to all of you, some I feel as if I know,
and Thank You for the help you have given me over the past 10 months.
My onset of TM seemed sudden. The Friday of Memorial Day weekend I was
cutting a friends hair. I began having a sharp pain in my upper back.
Thought it was just a kink and tried to work it out. I them began to
have numbness in my left arm and them into my right. After dropping my
comb a couple time and when I could barely open and close the scissors I
told my friend something was wrong. Thank goodness I got the last snip
in on her hair. She took me to the hospital and by the that time I was
having a hard time opening my hands and was getting leg weakness. After
2 days in the hospital and several x-rays and cat scans a neurologist
order a MRI. By Sunday he had diagnosed me with TM, checked my spinal
fluids, which were fine and I was sent home on Monday Memorial Day.
Not quite sure what the heck TM was and feeling week, I thought I would
be better by weeks end and out shopping for flowers for the yard.
Needless to say but my yard did not get any new plants last summer. On
Tuesday the kids got picked up for school as I could not drive. My
symptoms began to worsen. I began to feel that sharp pain in my neck
and back. As I tried to reach in a cupboard for a cup my right arm fell
and hit me in the face and the pain worsened. I started to panic when I
tried to call my sister and my fingers couldn't push the buttons. after
numerous tries I got a hold of her. She came and called the neurologist
and he ordered steroids. I was very week. I remained out of work until
mid August.
My symptoms have improved greatly since and I am thankful for that.
However, my body just doesn't feel right. I still do have numbness on
the right side of abdomen, My right arm tricep still isn't doing good
and I have a stim unit here to help it from deteriorating any further.
I still get pain in my neck and back and in October I began experiencing
Lhermittes sign, and I do get so tired still. I get a cold burning
feeling in my arms and hands and they aren't cold to the touch. If
something cold touches my fore arms it feels like it burns.
Has anyone onset been from a virus? Another thing I experience that my
neurologist thinks is something other than TM is if I am out in and it
is windy or cold and tense up almost as if to shiver, my legs stiffen
up and I have a hard time walking. Has anyone experienced that?
There, I did it, I am now identified!
Rita (Snowing BIG TIME in Cleveland)
