Jeanne, It is okay to have a 'Pity Party for One' at times. Sort of clears the air. I do that every once in a while myself and I'm sure that more of us do it as well.
Heather in Calgary ----- Original Message ----- From: jrushton To: Gerry Surette ; [email protected] Sent: Monday, March 24, 2008 10:14 AM Subject: [TMIC] It's okay... You can be as emotional as you want, any time you want!! I think most of us try to be 'up' and 'positive' as often as we can but there comes a time when our old bodies just plain get bone tired and then it's time to take the time for ourselves to rest, both physically and emotionally. When I first came down with TM, I decided I was going to be old Mary Poppins and choose the positive over the negative which is the way I've always liked to live my life as often as I could...the 'cup is half full' not 'half empty', and laugh so I don't cry? Well, that can still work a good part of the time but by gosh, you just can't always make it! AND it's okay!!! Not too long ago I decided I was taking way too much Lyrica (approved by my provider) because I didn't like the side effects. Well, the first week was one of the worst and there were definite withdrawals both horribly painful and emotional. One day I was on the front porch swing just sobbing from my toes and who shows up but one of my daughters right out of the blue. (God's doing, for sure) and I just couldn't stop crying. It scared her to death because both my girls don't see me cry very often. I usually laugh just to hear myself laugh (true!). Well, this was a cleansing of the soul and a good way to get some of that 'stuff' out of my body, I would swear. After that, I felt better, got lots of good hugs from my daughter and Jack and I was back on my way. Sometimes we are so hard on ourselves. God wants us to be good to ourselves so we can also be good to others. Jeanne -------Original Message------- From: Gerry Surette Date: 3/24/2008 11:58:01 AM To: [EMAIL PROTECTED] Cc: [email protected] Subject: RE: [TMIC] So strange many thanks; The procedure itself is not painful; the bone marrow retival for biopsy is uncomfortable. the side effects though of three days for five hours each day is to say the least" NEVER AGAIN" I had a high fever chills etc; on top of my leg and feet spasms. It was certainly a memerable week Thank God jesus was by my side as well as my wife who when I had my spams I tend to hypervenilate; the pain is so great. She is there to calm me down and help me breathe normally until my spasm ends. You all know what these are. it is T<M<: life is never preditable. you have to roll with the punches. You just have to be thankful that the day you have no pain is a blessing. You have to make the best of it. Sorry if I am being emotional but the is the way I feel I have to take each day as it comes and be thankful for any blessing I receive. gerry >From: "jrushton" <[EMAIL PROTECTED]> >To: "Gerry Surette" <[EMAIL PROTECTED]>, <[email protected]> >Subject: RE: [TMIC] So strange >Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time) > >Gerry! I was just getting ready to ask if anyone had heard from you! You >have really gone thru some rough times and now they are going to remove >your >spleen? Your advise is good...thank you! You are in my prayers..Jeanne in >Dayton, WA > >-------Original Message------- > >From: Gerry Surette >Date: 3/24/2008 10:15:02 AM >To: [EMAIL PROTECTED] >Cc: [email protected] >Subject: RE: [TMIC] So strange > >I know exactly how you feel. I 've had tm since the age 0f 21 have been >able >to function until 2001 when I had a relapse. I too am 60 years young. My >plete count has gone way down a side effect of TM after numerous >treatments >i now have itp. I have gone through three treatments of immunoglobiulin >which have not worked. Now I have another treatment to go through to raise >my plete count at which time they will remove my speen. I urge everyone to >have there white blood cells plete count examined on a regular bases. Life >with TM is always a daily challenge. like they say it is like a box of >choclate you never know what will happen day to day. yes you have to have a >positive attidude. It is your life and you only have control of it. It is >up >to you to decide if you will fight it or let it get to you. for me I would >rather fight . It is hard but life is worth it > > > >From: "Robert Pall" <[EMAIL PROTECTED]> > >To: <[email protected]> > >Subject: [TMIC] So strange > >Date: Mon, 24 Mar 2008 10:56:52 -0400 > > > > Just a fast topic for discussion. In my case TM is like a box of > >chocolates...you never know what you are going to get! > > It seems to me that how I feel from day to day is never the same! > >Some days are just terrible and some days are not so bad. I cannot point > >to the weather because that does not always have an effect on me. I do > >know if I get sick, even with a cold, my symptoms are always worse. > >Today is a beautiful day in sunny New Jersey and yet I feel > >terrible...why? > > For me the biggest problem is the "banding" on my right leg just > >above the knee. When it gets very bad (like today) it makes walking much > >more difficult and I walk with an even stiffer leg than usual. Is it > >possible that as our spine regenerates (even though it is a very long > >process...decades) we still experience changes all the time, because the > >feelings are somewhat different, and for TM'rs change is never good. It > >seems that when I start to get used to the feelings I have, and try to > >accept them, they suddenly change. > > I try to live with TM as best as I can. I try to keep a positive > >attitude and give thanks that I am able to work, walk and drive which so > >many of my fellow TM'rs cannot do....but some days are harder than > >others! > > Last week I heard from one of our group who after 11 years had a > >relapse. For me this is truly scary. I don't know what I would do if > >this happened to me. I have had TM for more than 10 years and I am now > >60, which means that on top of TM I am starting to experience the > >problems that come with aging such as arthritis. Sometimes I feel that > >the only place we can go is down! > > Sorry for the depressing attitude...I just need to talk to the group > >when I feel this way and then forget about it, get back my positive > >attitude, and move on. > > Thank you for letting me vent! > > > >Rob in New Jersey > > > ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.21.8/1339 - Release Date: 3/22/2008 4:43 PM
