re: Zanaflex. I have been on it for 4 years, I am on quite high doses of it and it helps, though I wish I did not havr to take it at all. It really lowers my blood pressure and worsens my orthostatic hypotension. If you increase your dosage be sure to do it slowly over a period of up to 3 weeks, this allows your body to adjust to it and the possible side effects.
Marieke Date: Wed, 23 Apr 2008 13:28:21 -0700 From: [EMAIL PROTECTED] Subject: tmic-digest Digest V2008 #185 To: [EMAIL PROTECTED] --Forwarded Message Attachment-- tmic-digest Digest Volume 2008 : Issue 185 Today's Topics: [TMIC] TM ON THE NEWS HERE IN NEW OR [ [EMAIL PROTECTED] ] [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!! [ [EMAIL PROTECTED] ] [TMIC] Pam's work for TM [ <[EMAIL PROTECTED]> ] Re: [TMIC] Pam's work for TM [ "jrushton" <[EMAIL PROTECTED] ] [TMIC] Archives [ <[EMAIL PROTECTED]> ] [TMIC] New Medication [ "Robert Pall" <[EMAIL PROTECTED] ] Re: [TMIC] New Medication [ "Grace M." <[EMAIL PROTECTED]> ] [TMIC] Eagle vs Invacare Shower Whee [ Akua <[EMAIL PROTECTED]> ] --Forwarded Message Attachment-- Date: Wed, 23 Apr 2008 09:04:04 -0400 From: [EMAIL PROTECTED] To: [email protected] Subject: [TMIC] TM ON THE NEWS HERE IN NEW ORLEANS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! WELL I FINALLY GOT THE BIGGEST NEWS PROGRAM TO DO A SEGMANT ON THE MORNING NEWS . IT WAS ON MONDAY MORNING. I WAS SHOCKED. I CONTACTED ONE OF THE ANCHORS MR. ERIC PAULSEN. HE WROTE ME BACK. HE SAID HE WOULD LOVE TO DO A INTERVIEW WITH ME. I TOLD HIM ALL ABOUT TM. HE NEVER HEARD OF IT. I ASKED IF HE COULD HAVE MY DOCTORS ON TV.HE SAID HE WOULD BUT SO MUCH WAS GOING ON HE WOULD GET BACK TO ME , THAT WAS FRIDAY THE 18TH.TO MY SURPRISE HE HAD IT ON WITH DR. LUTZ MONDAY THE 21 ST. WE HAVE SO MUCH GOING ON THE FRENCH QUARTER FEST ALL THE STARS WHERE HERE FOR A PLAY AND OPRAH ALSO .I DID MEET HER AND SHE TOLD ME TO WRITE TO HER AND SHE WOULD DO A SHOW ON TM. SHE DID SAY IT WOULD BE AWHILE.SHE HAS SO MANY SHOWS TAPED. SHE ALSO HAS OTHER OBLIGATIONS, PLUS SHE IS INVOLVED WITH THE PRESIDENTIAL CAMPAIGN.ITS STILL GOOD NEWS. SO KEEP YOUR FINGERS CROSSED.SHE HAS THE LETTER .I HAVE FRIENDS WHO KNOW EVERYONE AND THATS HOW I MET OPRAH AND SAT IN THE PRESS BOX THE PRESIDENT WAS HERE FOR TWO DAYS. NOW ITS THE JAZZ FEST, FOR TWO WEEKS STARTING THURSDAY TILL SUNDAY THEN AGAIN THURSDAY TILL SUNDAY. SO MANY STARS WILL BE HERE. SOME LIKE BILLY JOEL AND SO MANY PEOPLE JOHN GOODMAN DELTA BURKE WHO LIVES HERE BRAD PITT AND HIS WIFE HAVE A HOME HERE.SO MANY BANDS THAT ARE GREAT. FAITH HILL HER HUSBAND TIM GRAFF TOO MANY TO NAME.ITS AS BIG AS MARD GRA. I AM GOING TO ASK MY HUSBANDS COUSINS WHO HAVE FOOD AND DRINK BOOTHS THEIR FOR A DONATION FOR TM .I ALSO AM GOING THEIR 2 DAYS THE WEATHER IS GOING TO BE NICE THIS WEEK I DO NOT KNOW YET ABOUT NEXT WEEK .I AM GUTSY AND I WILL GO TO EVERY BOOTH AND HOPE THEY WILL DONATE TO THE TM COALITION FOR TM. I HOPE TO GET TO MEET SOME OF THE STARS. MY FRIENDS WILL BE THERE THAT KNOW SO MANY POLITICIANS THEY WILL MEET THE STARS SO I HOPE I CAN ALSO. ALL I CAN DO IS TRY.HOPE AND PRAY SOME WILL DONATE TO OUR CAUSE. I AM GIVING A BUFFET -DANCE AT THE ELKS CLUB HERE IN SLIDELL.IT WILL BE FREE FOR THE LODGE AND THE BAND ARE DJ.THE FOOD I HAVE TO GO TO RESTAURANTS THAT I GO TO ALOT, I HOPE THEY WILL ALL HELP OUT. I KNOW MOST OF THE FIREMEN MY NEIGHBOR IS THE FIRE CHIEF IN SLIDELL, HE HAS ALOT OF PULL ALSO .I HAVE ALOT TO DO. JUDE SUGGESTED WE DEDICATE IT TO DOC, I THINK THAT WOULD BE A GREAT IDEA. I AM NOW THE REP FOR LA. I AM TRYING MY BEST. I HOPE THAT WE CAN GET THIS DISEAE KNOWN TO EVERYONE .I HAVE SPEECHES PLANED AT SCHOOLS.AND OTHER PLACES .I WILL SPEAK AGAIN TO THE ELKS CLUB I AM NOT SHY BUT I DO NOT FEEL I AM A GREAT SPEAKER. JUDE IS GOING TO HELP ME.IF ANYONE LIKE CAROL CAN HELP I NEED IT. GUNNY IS A BIG HELP AND I NEED TO CONTACT RICK IN TN. EVERYONE PLEASE PRAY FOR THIS ALL TO WORK WE REALLY NEED THIS. TOMORROW MC CAIN IS GOING TO BE HERE. I CANNOT GO TO THAT LECTURE BUT MY FRIEND BILL WILL BE THERE AND HOPEFULLY WITH HIM AND THE MORNING NEWS SHOW THERE IT WILL BE ADDRESSED. I HOPE SO.THAT IS MY NEWS ITS A START.IF EVERYONE IN A DIFFERENT STATE WROTE THEIR NEWS REPORTERS AND ASK IF A SEGMANT COULD BE ON THE NEWS THIS DISEASE WOULD BE REALLY KNOWN ABOUT .THATS WHAT WE NEED. IF I CAN DO IT I KNOW SO MANY OTHERS COULD DO A BETTER JOB THAN ME.IT JUST TAKES A LETTER ARE A PHONE CALL AND FAITH. MY MOTTO IS NEVER SAY NEVER AND TIAD!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! TIAD PAM PS--I HOPE ALL THAT IS GOING TO THE SYMPOSEUM WILL HAVE A GREAT TIME. WISH I COULD BE THERE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. --Forwarded Message Attachment-- Date: Wed, 23 Apr 2008 09:50:48 -0400 From: [EMAIL PROTECTED] To: [email protected] Subject: [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! JUDE IS NOT DOING WELL AT ALL.SHE HAS THAT SORE ON HER TAILBONE IT IS GETTING WORSE. IT IS SO DEEP. SHE STILL IS ON ANTIBIOTICS. SHE STILL HAS MRSA AND ITS IN HER BLOODSTREAM AND HER BONE. WHEN I CALL ITS A EFFORT FOR HER TO TALK SHE IS SO WEAK AND IN SO MUCH PAIN. THEY WHERE GOING TO LET HER GO HOME BUT SHE TOLD ME THAT WAS NOT GOING TO HAPPEN.SHE IS TRYING TO DO THESE SPECIAL SHAKES BUT IT SEEMS NO MATTER WHAT SHE EATS SHE GETS SO ILL WITH GASTRO PAIN AND HORRIBLE DIARRHEA. I JUST THIK IF HER DOCTORS WOULD OF LISTENED TO HER NONE OF THIS WOULD OF HAPPENED. I KNOW WHEN SOME PEOPLE WHO GET THEIR GALL BLADER TAKEN OUT DO GET DIAHRREA AND SOME DO NOT. I DID FOR A YEAR MY MOM HAD NO PROBLEM. SHE JUST HAS SO MANY PROBLEMS SHE NEEDS OUR PRAYERS A CARD WHATEVER YOU THINK WOULD CHEER HER UP. GOD BLESS JUDE AND OUR TM FAMILY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! TIAD PAM Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. --Forwarded Message Attachment-- Date: Wed, 23 Apr 2008 08:04:57 -0700 From: [EMAIL PROTECTED] To: [email protected] Subject: [TMIC] Pam's work for TM Pam Congratulations on getting TM on the news in LA. Is this available in the internet for us to view? A little birdie told me you had plans in the works to talk with Oprah and to get recognition for TM so I wasn't as surprised as some will be to read your post. However, I'm super impressed with your ability and drive. Keep us posted with your activities and achievements. Thank you for all the effort you have put into this. Blessings and prayers for your success Patti - Michigan --Forwarded Message Attachment-- Date: Wed, 23 Apr 2008 08:15:21 -0500 From: [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [email protected] Subject: Re: [TMIC] Pam's work for TM WHAT???? Oh my gosh! Tell us all about it, Pam! So exciting! Thanks, Patti, for sharing! Jeanne in Dayton -------Original Message------- From: [EMAIL PROTECTED] Date: 4/23/2008 10:05:24 AM To: tmic-list-at-eskimo.com Subject: [TMIC] Pam's work for TM Pam Congratulations on getting TM on the news in LA. Is this available in the internet for us to view? A little birdie told me you had plans in the works to talk with Oprah and to get recognition for TM so I wasn't as surprised as some will be to read your post. However, I'm super impressed with your ability and drive. Keep us posted with your activities and achievements. Thank you for all the effort you have put into this. Blessings and prayers for your success Patti - Michigan --Forwarded Message Attachment-- Date: Wed, 23 Apr 2008 08:20:48 -0700 From: [EMAIL PROTECTED] To: [email protected] Subject: [TMIC] Archives I sit here smiling as I hang my head in shame. lol I've been on tmic for over four years and I've only visited the archives once. It just wasn't as interesting as opening my computer and reading an up-to-date post. Fear and loneliness are as bad as lack of knowledge and the tmic has provided a life line for many of us along the way. One person's irritation is another person's gain. Just like everything else in TM, we're all different! Blessings to all! Patti - Michigan --Forwarded Message Attachment-- Date: Wed, 23 Apr 2008 16:04:21 -0400 From: [EMAIL PROTECTED] To: [email protected] Subject: [TMIC] New Medication New Medication I just started a new drug to help relieve banding. The drugs name is Tizanidine or Zanaflex. Do any of you take it or have you previously taken it. I have just started and am not up to the normal dose yet…however I am finding a noticable improvement in the banding. It is interesting that when I first started taking Lyrica I also noticed an improvement that has since not been so pronounced! Thanks! Rob in New Jersey --Forwarded Message Attachment-- Date: Wed, 23 Apr 2008 16:09:22 -0400 From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] CC: [email protected] Subject: Re: [TMIC] New Medication Hi Rob, Though I do not take it, a lot of my MS friends do, and with very good results. It eases the banding from the MS Hug. Grace --Forwarded Message Attachment-- Date: Wed, 23 Apr 2008 16:14:46 -0400 From: [EMAIL PROTECTED] To: [email protected] Subject: [TMIC] Eagle vs Invacare Shower Wheelchairs Anyone have experience with either or both of these? I'm trying to figure out which one to get. The Eagle has extra wheels for switching to a companion chaoir... not something i need, but i like that the seat pad comes as a solid unit with the removable insert. The Invacare seems fine, I just would prefer the solid seat to transfer to. any thoughts? Akua -- _________________________________________________________________ Enter today for your chance to win $1000 a day—today until May 12th. Learn more at SignInAndWIN.ca http://g.msn.ca/ca55/215
