I was tested for this device mid-April. I was lucky and the orthotist found the correct nerve and the response that is needed. It pulls my toes up like it is supposed to. I returned to him a couple of days later and he told me that he was very excited as he had tested 12 people before me and only 2 were good candidates and I made #3. So that is exciting. However when I did see him that second time he said that the required paperwork and govt approval was still pending. He had received an e-mail just that morning.
I was called on May 6 with another appt and this time everything was in order with the funding etc. So this past Monday the 12th I was given the WalkAide. It took 2 orthotists 2 hours to get it programmed just right. I didn't realize how it actually was lifting my foot until I saw it in their full length mirror. Without it turned on I hip-hiked and dragged my foot. With the device turned on I lifted my foot properly and did not hip-hike. That first day I went to the garden center, bought a few plants. Had a quick supper with hubby then we were off to a high school band concert. I must say that walking into the concert hall was easier. However, by the time I got home that evening about 10:30 pm I could have ripped the device off my leg and tossed it into a corner. I had had enough of the STIMS (electrical stimulations) for the day. I was in bed and asleep within a 1/2 hour. Got up 9 hours later. Yesterday morning I dreaded putting it on again as I wasn't sure about the Stims again. Well, it was not bad at all. I guess being tired was the big deal the night before. I had another appt with the orthotist yesterday morning. I told him when he asked that I had 'mixed reviews'. LOL Meaning works good but by the end of the day the nerve endings in anyone with TM are very touchy and tired. He explained that that was okay. It is a learning curve I guess. He is a very nice person and I know this will work well for me. I do find it a bit clunky but can work around it. I can turn it off when I am sitting having coffee with a friend or when seated having ameal etc. Anytime I am sitting I can do that as it will not then use battery etc. It only uses one AA battery. I am responsible for the cost of replacing the batteries (could be one in every 2 weeks or 1 every week - depends) and the cost of replacing the electrodes (once a week). I am soooo very fortunate that this is a clinical trial as I only have to pay the $500. fee and the rest is covered by the Alberta Aids to Daily Living. The full cost for this device is $4500. to $4700. Actually I am going to get in touch with the Insurance company that is with my job (I'm on LTD) and see if it is covered as in the letter I have with my receipt it is called an articulating ankle foot orthosis. Worth a try anyway. Heather in Calgary
