At 10:02 AM 5/18/2008, [EMAIL PROTECTED] wrote:
As most others, when I was diagnosed with Transverse Myelitis, I had
not heard of it . If it weren't for this access to others with TM I
would surely feel like the "Lone Ranger" in a negative way.
When I came home from the hospital in 1990 and got back online, I
searched all the online services I was on (GEnie, Compuserve, Delphi)
for any information on Transverse Myelitis. I didn't find anything.
When I first got Internet access in 1991 using a friends university
account, I found a few message from people asking questions about it.
I later got on Prodigy and AOL. In 1994 I put together my "disAbility
Resources and Information" web site gathering whatever information I
came across.
I started emailing one person with TM. He thought it would be neat to
have a "Transverse Myelitis Internet Club" so we could communicate
with others. When my internet service (eskimo.com) made email list
group an option I started one for quadriplegic and one for
vent-users. I started the tmic-list a few months later and sent a
message to the 10 or so people I had come across who had mentioned or
asked about transverse myelitis. That's how this list started.
In 1997 I offered to make a web site for the Transverse Myelitis
Association. We still didn't have much information at that time but
at least we had a way people could find us.
In 1998 I was picked by New Mobility magazine to be their "Person of
the Year". That was mostly because of the emails they received from
people on the tmic-list.
You are an inspiration and a rebuke to me, one of the "walking
wounded" who still tends to complain of the fatigue, banding, etc.
when I have not have the misfortune of paralysis. You no doubt have
had to work hard to function as you do.
Actually, I have not had to work at all. The only things I can do for
myself is operate my wheelchair and my computer. Before I'm put into
my wheelchair, I'm just lying in bed. I can't even turn my head, so
there is nothing I can work at. Once my mom or nurse put me in my
wheelchair I sit in front of my computer all day.
----
Jim Lubin
[EMAIL PROTECTED]
Home Page: http://makoa.org/jim
disAbility Resources: http://www.makoa.org
