Krissy, Regarding your worsening of symptoms, I, too, have had times of worsening of symptoms,
I was helped by an article from Sandy Siegel (editor's column, front page) in The Transverse Myelitis Association newsletter, December 2004. If you don't have the actual issue, it may be somewhere online--maybe someone more knowledgeable about that possiblity can help. In the article, Sandy explains how many people with TM experience exacerbation of symptoms which can be dramatic and severe, but do not appear to result from new destruction of myelin or nerve tissue. I hesitate to quote portions of this article lest I misrepresent what he is saying by not giving the complete picture he presents in the article. Sandy gives us advice to differentiate between exacerbations and an episode of recurrent TM. Hopefully someone can help out, if you do not have a copy of this newsletter, as to how it may be obtained. I hope this information is of benefit. The article helped me very much. Gary in Michigan ----- Original Message ----- From: Krissy Z To: TM List Sent: Thursday, May 22, 2008 11:17 AM Subject: [TMIC] relapse? I swear it feels like I am getting worse......my right leg the past 2 or 3 days has been numb and feeling *asleep* , just like the very first day 3 years ago. My *anniversary* of getting this autoimmune disorder was yesterday.....3 years now....my leg started to feel *numb* at the foot and has progressed to right below my knee. My other foot also feels a little numb, but not too bad. I am scared. I know if I call the neuro, he will order mri's. (of which I cannot afford right now....our insurance has a huge deductible and we would almost end up paying the whole thing....which would be $3000-$4000! )...I know sometimes you can have recurrences with TM...I guess I just didnt expert it. I'm afraid to call neuro. I'm afraid of results. I HOPE its just the weather...but I somehow I dont think so. It's not affecting my walking it just feels asleep and sorta numb.
