That is kind of funny because I actually have sacoidosis and that is what caused the tm. It was found by accident on an mri I was having. They noticed enlarged lymphnodes around my lungs and did a biopsy and found sarcoidosis. I have recurrences four times and I am finally on immunotherapy. Hopefully it keeps it away forever.
Lynn (in RI, very rainy) ----- Original Message ----- From: Regina Rummel To: [email protected] Sent: Thursday, July 24, 2008 2:47 PM Subject: [TMIC] "Key Points" re symposium I just read with interest the following Key Points: . All TM patients should be investigated for signs, symptoms and serologic evidence of systemic autoimmune disease (don't we already have an "autoimmune" disease?) . Sjogren's syndrome, sarcoidosis and lupus should always be considered in a patient with TM . Patients with TM in association with systemic autoimmune disease are more likely to have recurrent neurologic disease and should be considered for chronic immunomodulatory (looked that up on line and don't get it) treatment. I'll let you know what my neurologist's reaction to the above will be Monday when I'm scheduled to see her. If my doctors are aware of the need for these key points, I'm not aware that they are.
