i have a question, has anyone else been told that they don't have lesions on
their spine? my neuro says mine is just swelling from c6-t3 and t9-t10., so
what does that mean? will the swelling go down? will i be able to recover? i am
a single mother of two and i really want to be able to take care of myself and
my babies. i keep thinking i am not trying hard enough. i am wheelchair bound,
and it seems recovery is happening but very slow. got diagnosed aug. 11th of
this year and was told i would see most of recovery from 3-6 months. i feel
like i am on some deadline and my time to get better will be up soon. i am
scared and i am not sure what to do. any advice?
thanks
amanda in calhoun, ga
--- On Thu, 11/20/08, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
From: [EMAIL PROTECTED] <[EMAIL PROTECTED]>
Subject: tmic-digest Digest V2008 #431
To: [EMAIL PROTECTED]
Date: Thursday, November 20, 2008, 1:19 PM
tmic-digest Digest Volume 2008 : Issue 431
Today's Topics:
RE: [TMIC] Anybody else been there? [ "jrushton"
<[EMAIL PROTECTED] ]
[TMIC] Re: Terry walking [ [EMAIL PROTECTED] ]
#yiv408495886 v\:* {
}
#yiv408495886 v\:* {
}
You will never be alone as long as we all hang in there together. What I write
comes from the bottom of my heart even if it doesn't always come out right!!
And, yes, we do understand. We are a chosen few and that makes us pretty
special! j
-------Original Message-------
From: Robert Pall
Date: 11/20/2008 7:06:15 AM
To: jrushton
Subject: RE: [TMIC] Anybody else been there?
Jeanne...both you and Tobe have made me feel less alone...to me that is what
this list is all about...people who truly understand!
Thanks
Rob
From: jrushton [mailto:[EMAIL PROTECTED]
Sent: Wednesday, November 19, 2008 4:40 PM
To: [EMAIL PROTECTED]; tmic
Subject: Re: [TMIC] Anybody else been there?
Rob, I didn't get your message but reading Tobe's I just needed to tell you
that could not have said it any better! Jack is always saying he would not be
able to live with the TM like I do, as we all do, but everyone does what he or
she has to. We try to keep the best attitudes we possibly can and that does
help us inside but oh, sometimes it hurts so bad and there are no words to
describe it. I just say again, keep on keepin' on...
Jeanne in Dayton
Leila, ( I love your name)!
I asked Terry what he feels has made him take all these steps recently and he
can't really pinpoint one thing. His muscles definitely atrophied, but he has
begun to rebuild them a bit. He had GREAT LEGS! He doesn't do PT accept in
the summer in a pool. He can completely walk in a pool. He has this buoyant
waist belt that assists him so he can go the distance.
I feel some of the reason he was able to take these steps is that he is always
in and out of his wheelchair, he stands a lot cooking and gardening using the
wheelchair for balance if needed. I also think if he didn't have shoulder
issues, he would have been able to use a walker or crutches much sooner or more
often. His arms became his legs and now his shoulders are shot thanks to
osteonecrosis (prednisone induced). One shoulder replacement and 1 other
surgery on each shoulder. His other shoulder needs to be replaced.
I'm wondering why you don't have a firm DX?? The gradual deterioration sounds
more like MS to me. I am no doctor, tho. Have they done a brain MRI? I'm so
sorry for your decline. As everyone says here, keep up the PT!! And we need
to continue to push for stem cell research!
Sandy
Dear Sandy,
Thank you so much for telling about Terry walking. This is a beautiful miracle.
If you have time, please tell me how you kept his muscles from getting
atrophied all those years. Any special exercises?
I have TM or possibly MS, not sure, since five years, gradual deterioration,
now in wheelchair, unable to stand since two years. I am not paralyzed though.
I do exercises daily with legs and arms. I am using an electronic lift for
transfers and I have a caregiver day and night. I wish to know what to do to
start walking again. I believe it is possible. Your letter gives me renewed
hope.
I would love to know what Terry did to start walking, something that would help
others.
Please write!
Leila
One site has it all. Your email accounts, your social networks, and the things
you love. Try the new AOL.com today!
