Dearest Grace, Just 2 days ago Jude wrote and asked if anyone has heard from Grace. I looked on the Devic's Forum and realized you were there last weekend.
I'm so sorry to hear that you have had a relapse. And that it has affected your vision so terribly. I know that Devic's is so much worse than TM as you just never know when it will stop. Please know that you are in my thoughts and prayers. Write to us when you can. Hugs (lots of them) from Heather in Calgary ----- Original Message ----- From: Grace M. To: [email protected] Sent: Wednesday, November 26, 2008 10:08 AM Subject: [TMIC] Devics NMO Relapse. Sorry for being out of touch, but have relapsed. It is my vision this time. We did an emergency chemo and three days of IV SoluMedrol and I'll be repeating chemo on Devcember 8th. My vision has not improved much, and I am very disheartened. I just had an MRI of the cord, brainstem and brain, about three months ago and everything was stable---so, this really hit me out of the blue. Why couldn't it have been simple MS? Why this? We have recently had several deaths among our Devic's Advocacy members and have several more that are in terrible shape. My heart just can't cope with it anymore. I HATE this. Grace
