Kevin,
I too am surprised at your doctors reluctance to give you pain meds! Sometimes I wish doctors could experience the pain that we go through just to get up everyday. I can sympathize with the hand pain because I go through hand pain anytime that I use my hands too much. I also know what stress can do to elevate TM symptoms - been there, done that, got the Tshirt to prove it! Please don't give up! There has to be a doctor who knows about TM near you. Have you asked your doctor to consult with Dr. Kerr, r any of his associates, at John Hopkins Hospital? If not, ask him to call - Fax - 410.502.6736 or Phone - 410.614.1522. Maybe if he had someone who really knew about TM he/she might be more understanding. Pain is my chief complaint about TM. I can live with the dragging of my foot, my hands not working from time to time, but the pain is really something that some days I wish I could do away with but I only know of one way, and I really want to be around for a few more days, weeks, years! Keep trying there are good doctors out there! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "L T CHERPESKI" <[EMAIL PROTECTED]> To: [email protected], "Kevin Wolfthal" <[EMAIL PROTECTED]> Sent: Sunday, December 7, 2008 2:24:06 AM (GMT-0500) America/New_York Subject: Re: [TMIC] hi all Hi Kevin, I'm so glad you wrote. We need you to stay in contact so that we know how you're doing. I'm very sorry to hear about your mom. I can't even imagine what you went through. I'm glad that she is doing better. And what's up with your neurologist??? Please don't give up on getting some pain meds. I don't understand this. Do you live in an area where there are many doctors or are you in a smaller community. There's just no excuse for this and it makes me mad (can you tell?) Please don't give up, Kevin. There is help available. Keep in touch Hugs Linda ----- Original Message ----- From: Kevin Wolfthal To: [email protected] Sent: Saturday, December 06, 2008 9:09 PM Subject: [TMIC] hi all Dear Friends, Sorry I haven’t been on lately. My hands have gotten very bad with numbness and pain. Last month my Mom collapsed in front of me and I had to give her CPR. She revived and spent a month in a nursing home and is home now doing better. The trauma of all this has affected my health negatively. I am just thankful I was able to get to her in time. This has been a fear of mine for a long time. I have given up on getting help for myself. I’ve had so many negative experiences with doctors..the neurologists refuse to give me anything for pain. They want me to have a nerve biopsy, which I have read will cause numbness in that area, and I don’t need any more numbness. I asked Senator Lieberman if he could get some funding to the NIH for TM research and he promised me he would try. He has helped me personally with other issues, so we’ll see. Wishing you all the best. Kevin
