LINDA
I AM NOT ON STEROIDS AT THIS TIME. I WAS WHEN I WAS IN THE HOSPITAL AND FOR SEVERAL WEEKS AFTER COMING HOME. I, TOO HAVE SJOGRENS. ARE YOU ON A DRUG TO SUPPRESS YOUR IMMUNE SYSTEM? I AM ON AZATHIOPRINE 50 MG A DAY AND HAVE BEEN FOR SEVERAL MONTHS. I HAVE NOTICED THAT SINCE I HAVE BEEN TAKING IT, IT IS AFFECTING MY FINGER NAILS AND HAIR. MY STRONG NAILS HAVE TURNED TO PAPER, AND I HAVE LOST ABOUT HALF OF MY HAIR VOLUME. IS THIS NORMAL? IF SO, I AM GOING TO STOP TAKING IT. I SEE MY DOCTOR TOMORROW AND WILL TALK TO HER ABOUT IT. I GUESS IT IS VANITY, BUT WHAT ELSE DO WE HAVE. I WOULD APPRECIATE ANY INFORMATION YOU MIGHT HAVE. PATTI - WISCONSIN From: L T CHERPESKI [mailto:[email protected]] Sent: Saturday, February 21, 2009 10:22 PM To: [email protected]; Regina Rummel Subject: Re: [TMIC] T-2 Lesions Hi Regina, I may have missed some posts, but I need to ask how you're doing? Where is/are your original lesion? And have you had a new episode with new lesions? I have lesions at C4, 5 & 6 and have had several bad flare ups but I also have Sjogrens so they both can act up. I'm on Imuran and Rituxan infusions to hopefully prevent further damage. Do you have another autoimmune disease also, as this can cause havoc with TM too. Just wondering what conclusion your neurologist came to. I can understand being scared, and I hope you at least have some answers from your doctor. It seems we can deal with what we know, it's the "not knowing" that scares us. I hope you're feeling better. Linda in Eagle, ID ----- Original Message ----- From: Regina Rummel <mailto:[email protected]> To: [email protected] Sent: Wednesday, February 11, 2009 3:15 PM Subject: [TMIC] T-2 Lesions Am going over the MRI report of the brain before seeing the neurologist. One notation in particular concerns me and I quote "The FLAIR study demonstrates multiple bright T-2 lesions in the deep white tracts of both cerebral hemispheres, etc..." Frank explained at one time that 1 lesion is TM, more than 1 is MS. I'm scared. What do you think? Many thanks for your comments. R
