It is a long road, Mindy, and as the years pass,  for some of us, it is slow 
going.  I remember at the two year mark  how much hope remained in my heart, 
soul and mind.
 
The Dr.'s all told me that many persons find  improvement and change within 
the first three years, after the three year  mark...it is not likely to see any 
more improvement.
 
I hoped, I prayed, I remained positive, yet I  experienced no improvement in 
sensation or movement.  I remained  paralyzed from T3 (right under the 
breasts), to the tips of my toes.   I still felt no sense of touch when someone 
ran 
their fingers over my  abdomen, thighs, legs feet and toes.
 
And eight years later, nothing has  changed.
 
I don't mean to burst anyone's bubble...change  can happen.  I've read plenty 
of stories from persons I know and  trust completely.  I believe that their 
stories are true.   Recovery from being paralyzed  to regaining movement is not 
unheard  of...
 
Only not for me.
 
I hope and pray that you are one of the lucky  ones, Mindy.  Keep exercising 
those legs, do range of motion  movements religiously, several times a day.  I 
was lax at doing my  exercises and therefore ruined whatever chance at 
recovery I might have  had.  I will never forgive myself.  I remain profoundly  
paralyzed to this day.
 
But it could be worse.  I am fortunate to  have the use of my arms, hands and 
fingers.  I can move with ease  every part of my body above my breasts.  I am 
thankful for every inch  of movement and sensation I have.
 
Try to remain positive.  Exercise your mind  along with your body.  Keep up 
with your friends and affiliations to  the best of your ability and the days 
that you feel like simply staying in  bed and not participating are the days 
when you need to do something more  than ever.  Get your butt out of that bed.
 
Learn from me, who did not do the things  recommended by the docs.  To this 
day, I lay in bed.  I read,  watch too much television and occasionally have 
the pleasure of a visit  from a friend.  But life is not what it was.
 
The old adage, Don't do as I do, do as I say, is  perfectly true to this day. 
 Enjoy your new life...it's the only one  you have.
 
Love,
Jude
 
 
In a message dated 3/1/2009 11:47:27 P.M. Eastern Standard Time,  
[email protected] writes:

today is my 2 year anniversary of contracting TM.



Mindy the  Artist





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