I have had my baclofen pump for about a year and a half now. I dont think it
works any better at controling the spasms than the oral baclofen does, but I
dont have the brain fog as bad as I did when taking the pills. The main
problem I have with the pump is the cost. My insurance covers 80% of cost so
every time I have to go in for a refill (every three months) it costs me about
$350. Plus I have to drive about 150 miles round trip to have it filled and /
or adjusted.
The level I am at right now is not as effective as I would like, but when we
tried turning it up I was unable to empty out my bladder so had to go back down.
As far as infections have had no problems there. But the surgery itself was
miserable. Between the almost 6" incision in the front where the actual pump
is and the 3" incision on back where the catheter was inserted into spine I was
in alot of pain for the first week. It is also very difficult to find cloths
that dont cling to the pump and make it stand out like a sore thumb.
The pump has to be replaced every 5 years, and when that time comes I don't
think I will have another one put in, will just have them take this one out.
Lynne
From: [email protected] [mailto:[email protected]]
Sent: Thursday, March 12, 2009 12:49 PM
To: [email protected]
Subject: [TMIC] Implantable pumps
I want to get some feedback on the implantable pump (intrathecal) that provides
meds directly into the spine.
Any problems with infection?
Cost on Medicare - 80/20 or 100% ?
Convenient to have, or a pain with upkeep, maintenance, whatever problems you
may have had?
Did it work (regardless of the med, but it would be nice to know)?
I am looking at pain relief, and probably anti-spasmodic being delivered via
this device. Thanks for your input. mt
