Hi Janice and a big warm welcome to the group. My name is Linda and I have had TM for 7 years now. My lesions are at C4, 5 & 6 - cervical area. Mine started with numbness and tingling in my toes and just worked its way up to my chest. I had no feeling, but I could still walk - sort of. Once the numbness went away this wonderful nerve pain started. Mine is in my legs and back also, but I do not use a spinal cord stimulator. I know some people do.
I think Trudy may have answered this already but most people take Lyrica or Neurontin for the nerve pain and Cymbalta can help as well. Are you on any medication?? Your doctor might want to start you on something for that awful arthritis pain. Do you experience the extreme fatigue that most of us deal with? Gee, I have more questions than you! Sorry - just trying to get to know you better. Are you having any trouble sleeping through the night? My neuro just recently put me on Zanaflex to help with sleep as well as pain. It does seem to be helping some. (as I sit at my computer burning!!) Time to go to bed I guess. This is one of those days where I have done more than my body wanted me to do and now the burning is not being kind. I'm so glad you've joined our group, and I'm sorry that I asked more questions than gave answers. This is still so new for you. There will be many questions that come up, this is very normal. Please ask them. There is always somebody here to help. Linda in Eagle, ID (but born & raised in Seattle) Message ----- From: Janice<mailto:[email protected]> To: transverse myelitis<mailto:[email protected]> Sent: Tuesday, March 17, 2009 10:07 AM Subject: [TMIC] Pain I hate to keep bugging you all with questions, so I hope you don't mind and will take a minute to answer. Several of you have talked about the pain that you have, apparantly even after several years of TM. I am assuming we are all talking about nerve pain - which I have in my legs and back and use a spinal cord stimulator for. Is this correct or is there something else out there causing this? Also, would you please give me the name of the medicine you take for pain? I have another appointment with my neuro on April 1 and would like a little backup as to what else is out there that is working for others. My stimulator is working pretty well, but the TM is really aggravating the arthrtis that I have in the lumbar region. That is the only question I have for now, but I am sure I will have more later - if you don't mind. Janice
