HELLO: ALL OF YOUR COMMENTS HAVE BEEN VERY ENLIGHTENING. MY EXPERIENCE IS VERY DIFFEERENT, PROBABLY BECAUSE MY TM IS NOT AS SEVERE AS MOST. THE FEELING IN MY LEGS AND FEET IS DIFFERENT FOR EACH LEG AND FOOT. MY LEFT LEG IS STRONGER AND I HAVE MORE FEELING IN THE LEFT FOOT THAN THE RIGHT. I AM ABLE TO TELL TEMPERATURES BUT I ALSO KNOW JUST WHERE TO TURN THE FAUCET TO HOT SO AS NOT TO BURN. I HAVE BURNING MORE IN THE RIGHT LEG AND MANY TIMES HAVE STABBING PAINS BUT NOTHING TOO SEVERE. I DON'T KNOW IF MY SYMPTOMS WILL GET WORSE AS TIME GOES BY OR NOT. I CAME DOWN WITH TM LAST JUNE SO IT HASN'T BEEN VERY LONG FOR ME. I GUESS I WILL HAVE TO WAIT AND SEE. I REALLY APPRECIATE ALL THE COMMENTS PEOPLE POST. IT IS VERY DIFFICULT TO DISCUSS THIS WITH FAMILY AS THEY CAN'T REALLY UNDERSTAND EVERYTHING.
THANKS AGAIN FOR ALL THE HELP. PATTI IN WISCONSIN From: jrushton [mailto:[email protected]] Sent: Sunday, March 22, 2009 1:36 PM To: [email protected]; tmic Subject: Re: [TMIC] Water Temp & Pin & Needle Pain Hi, everyone! I've been reading all of the notes on body temps and could not agree more that since the onset of TM, we no longer have a normal 'thermostat'! We do have to be careful with our circulation and neuropathy so it is so important to watch our limbs (as you learned from my last mishap!) not only for hot and cold water but injuries. Since day one, I have hypersensitivity on my right side and no sensation on the left even tho it is by far the strongest. They both feel very heavy and both have constant excruciating pain so Lyrica and Ultracet do help take the edge off. The temperature outside has really played havoc with the pain. The cold and rain really increases the pain and I have added prescription Ibuprofen. It's tough but we just have to take care of it as it occurs. I feel blessed that I can walk and am alive. What more can I ask than that after what I had when it first happened?? Jeanne -------Original Message------- From: Todd Tarno <mailto:[email protected]> Date: 3/22/2009 12:13:18 PM To: Janice <mailto:[email protected]> Cc: TMIC <mailto:[email protected]> Subject: Re: [TMIC] Water Temp & Pin & Needle Pain Hi Janice, Water temperature are very hard to tell all the time. I always but my shower at it's hottest to warm up my shower chair, then lower the temp with my hands telling me the temperature of the water. I'm able to run very warm water over both legs when they are cold. But please be very careful. Pin & Needles Pain are full time too. They can start out really bad in the beginning, then get better, and as you get NEW feeling, they can get worst again. You could ask your doctor to up & lower the dosage of your Pain Meds, Neurontine/Lyrica. I'm on 300 mg Lyrica a day. Hope this helps, Todd in Corpus Christi, TX TM since April 1, 2002 @ T-4 to T-8 --- On Sat, 3/21/09, Janice <[email protected]> wrote: From: Janice <[email protected]> Subject: [TMIC] To: "transverse myelitis" <[email protected]> Date: Saturday, March 21, 2009, 4:15 PM This is Janice - yet again with another question. It has been 2 years since the onset of TM. From the top of my ribs to my toes I can not tell water temperature on my skin. I have to be very careful with taking my showers. Do any of you have that? I am wondering if it is something that will eventually go away or if it is something I will live with. Also, one improvement I have just noticed lately is the constant "buzzing" that I had in my legs as soon as feeling started coming back. Did you all have that and have any of you also lost it? Thanks again, Janice
