What would happen if you put a plastic grocery sack over each foot? Would
that be loose enough, but still give you protection from the elements - and
keep people f rom giving you all of their ideas? Janice
----- Original Message -----
From: [email protected]
To: L T CHERPESKI ; Janice ; Patricia Cooley ; 'jrushton' ; 'tmic'
Sent: Thursday, April 09, 2009 10:38 PM
Subject: Re: [TMIC] Lack of Communication
I also can not wear shoes or socks. Not even the ‘softest socks” out there, I
can’t tale anything touching my feet. I have to sleep with my feet outside of
the covers because I can’t take the sheets touching my feet. The skin on my
feet feels tight and they burn like they are frying in grease. Winter is hard
as when I am in public without shoes or socks on so many people stop me to tell
me its cold and why don’t I have anything on my feet. I get tired of telling
the long story so just tell them due to nerve damage I can’t wear them. Then
people start telling me “wear soft socks” I tell them sock and shoes burn m
feet. But its amazing how people do not listen and keep telling me which socks
to buy that will help…I understand people mean well but it’s hard to explain
that even my feet toughing the foot pegs on my wheel chair is very painful. So
far I have learned to try to put them up when I can, and I keep mint type foot
lotion with me all the time and it is a short time relief. So when it’s snowing
or freezing out here I am rolling around bare foot. But funny thing is I love
foot massages. When someone rubs my feet it feels so good and I don’t want them
to stop.
Have tried Neuratin, did not work, how I am on 60mg Cymbalta and it seems to
help the nerve damage in my legs but no change in my feet.
-------------- Original message from "L T CHERPESKI" <[email protected]>:
--------------
I am exactly the same! So what do you do about shoes? I arrived at my
Rheumatologists office in flat open sandals in 8 inches of snow this winter.
He looked down at my feet and said "I don't even need to ask"
Also it hurts to have my very soft sheets touch me. I know there are a lot
of us who have this challenge. Suggestions anyone? Thanks
Linda (Idaho)
----- Original Message -----
From: [email protected]
To: Janice ; Patricia Cooley ; 'jrushton' ; 'tmic'
Sent: Wednesday, April 08, 2009 7:24 PM
Subject: Re: [TMIC] Lack of Communication
Same here! my feet burn 24/7, they fell like there in grease frying all
the time. I can not take socks or shoes on my feet, even the blankets oin the
bed hurt them.
-------------- Original message from "Janice" <[email protected]>:
--------------
Can we switch problems?! I also love St. Crois Falls, Wis. I have
relatives there and it is beautiful!
----- Original Message -----
From: Patricia Cooley
To: 'jrushton' ; 'Janice' ; 'tmic'
Sent: Wednesday, April 08, 2009 3:50 PM
Subject: RE: [TMIC] Lack of Communication
HI JANICE:
I DIDN’T GET YOUR ORIGINAL POST ABOUT BEING WARM ALL THE TIME, BUT
DID GET JEANNE’S ANSWER TO YOU. I HAVE THE COMPLETE OPPOSITE PROBLEM. I AM
COLD BRRRR! ALL THE TIME. THE WORST ARE MY FEET. THEY FEEL LIKE A BLOCK OF
ICE MOST OF THE TIME. THIS WINTER I HAVE BEEN MEISERABLE. I HAVE HAD TO
HUDDLE UNDER BLANKETS WHENEVER I AM SITTING STILL FOR A WHILE. EVEN LAST
SUMMER WHEN WE HAD THE AIR CONDITIONING ON, I HAD TO HAVE A SWEATER. I HAVE
BEEN TOLD TM SCREWS UP YOUR INTERNAL THEMOSTATE. I DON’T WANT TO TAKE ANY
MORE MEDS SO WILL JUST KEEP A SWEATER HANDY WHEN IT IS TIME TO HAVE THE AIR ON
THIS SUMMER.
TAKE CARE, JANICE.
PATTI IN WISCONSIN
From: jrushton [mailto:[email protected]]
Sent: Wednesday, April 08, 2009 9:08 AM
To: Janice; tmic
Subject: Re: [TMIC] Lack of Communication
Hi, Jan,
It looks like we TMer's are back in business with all of the
notes going back and forth and your temp. problem is one of the main subjects
right now! I'm so glad we're back in business as I miss you all when we take
our 'naps' as we do off and on.
I'm off to stay with my little Sis for a couple nights so we
can meet up with my big Sis and go to our monthly '60's Chicks' luncheon in
Grandview which is where we graduated from. All Grandview 'chicks' no matter
what year they graduated try to meet and we have lunch, chat for a couple hours
and off we go. It is really a special time as we have all learned how special
life is and is not to be taken for granted. Some we haven't seen since
graduation or longer. Take care, all! Jeanne in Dayton
-------Original Message-------
From: Janice
Date: 4/7/2009 9:52:58 PM
To: transverse myelitis
Subject: [TMIC] Lack of Communication
Hey Guys!!! Sounds like everyone is really ready for
SPRING! I am really ready to dig my hands into the dirt and get my flower
pots ready for summer. I can't plant in the ground anymore, but I sure go
nuts with my pots! We have already planted pansies and they are looking
great. Won't be long for spring.
Got another question for you all. Do you have a problem
with all of a sudden getting too hot - and no one else is? It isn't
hot flashes, had a complete hysterectomy over 20 years ago.
This just started since TM (2007). My doc has given me patches
of clonidine. You change it every week and it does help -
doesn't cure it, but it helps. I am dreading warm, humid weather because that
is when it is the worst. We live in Missouri and the summers get pretty warm
and humid. But we keep our house pretty cool in the winter too. I really
notice it when I am more active.
What about you all?
I have only been on the site a couple of months, but I really
miss your "chatting" when it is quiet. I know every one of us has a lot to
deal with, some more than others. But, when we are emailing, we are all on
level ground and getting to know the real person, not
just the TM person. I have many friends, but I count myself
very fortunate to have found you all.
Janice
