Thank you. You are right about the exercise. I have never liked exercise except for water aerobics, but now I have too much at stake to not do it - we all do. I don't get dizzy standing, but my legs start to give out. Hate TM. Janice ----- Original Message ----- From: Patricia Cooley To: 'Trudy Ogilvie' ; 'Janice' Cc: 'transverse myelitis' Sent: Tuesday, April 14, 2009 10:33 AM Subject: RE: [TMIC]
I HAVE PROBLEMS WITH BALANCE ALSO. EXERCISE IS THE KEY. I HAVE BEEN WORKING MY PART-TIME HOURS FOR THE PAST 2 MONTHS WHICH REQUIRES A LOT OF GETTING UP AND WALKING AROUND. SINCE MY WORK AREA IS SMALL I HAVE TAKEN TO PARKING MY WALKER AND WALKING ALONG DESK AND COUNTERS. SINCE DOING THAT I HAVE FOUND THAT I CAN WALK AROUND WITHOUT MY WALKER IN THE HOUSE. I NEVER THOUGHT I WOULD GET TO THAT POINT, BUT I HAVE. MY NEXT GOAL IS TO USE A CANE, WHICH I AM SURE I COULD NOW BUT FEEL MORE SECURE WITH MY WALKER WHEN I AM OUT AND ABOUT. HOWEVER, MY BALANCE IS STILL NOT RIGHT. AS LONG AS I AM MOVING I AM O.K., BUT AS SOON AS I TRY TO STAND WITHOUT MOVING I START TO SWAY AND HAVE TO GRAB ON SOMETHING. SO KEEP UP THE GOOD WORK, JANICE. WE WILL BE PRAYING FOR YOUR IMPROVEMENT. PATTI IN WISCONSIN From: Trudy Ogilvie [mailto:[email protected]] Sent: Tuesday, April 14, 2009 8:25 AM To: Janice Cc: transverse myelitis Subject: Re: [TMIC] Janice It's incredible what a difference a really good therapist can do for you! My new therapist has definitely made a difference in my walking and my "attitude". I had pretty much given up after 7yrs. of any real improvement. The big BUT is.... you have to do your exercises faithfully every day. I took a nasty fall in an elevator and I did nothing for two weeks but rest! I cannot believe how much I have "regressed". This 62 year old body just does not want to return to that exercise routine!! Boy you are so right ... blood, sweat and tears!!! ARGH!! We'll send each other positive vibes to help keep us focused! Oh you'll definitely say some prayers..like.. Oh God if she makes me do one more lunge I'm gonna die!! :) Blessings! Trudy P. S. I cannot close my eyes and balance myself. I get dizzy.. anyone else??? Please let me know if my font on my e-mails is too big??? On Tue, Apr 14, 2009 at 12:31 AM, L T CHERPESKI <[email protected]> wrote: Hi Janice, This new session of leg therapy sounds very positive. And I know what you mean by blood, sweat and tears - but it will definitely be worth all the effort. I am already seeing you in the pool again! No more hospital food. I will keep you in my prayers. Be sure to let us know how you're doing. Just keep visualizing that water! Hugs, Linda ----- Original Message ----- From: Janice To: transverse myelitis Sent: Monday, April 13, 2009 9:17 PM Subject: [TMIC] Well, I am really into a new session of leg therapy with a new therapist and getting excited about being able to get stronger and hopefully walk better with less pain. This therapist is supposed to be really good. This will be done with blood, sweat and tears - litterally. But, I can see me getting closer to getting into the pool again. I dearly loved my water aerobics. Please say a prayer for me as I always do for my TM friends. This is a last-ditch effort on our part. If this doesn't do it, my only alternative will be drugs and lots of sitting. The enthusiasm for swimming from you is overwhelming. I used to dream when I was in the hospital about walking in the water again. Then, I would wake up to hospital food! It is getting late, so I will sign off. Really enjoy all the issues we discuss - I learn from them. Janice
