I was wondering if there is anyone here who is a c6 quad with very little use of their hands and no use of their legs that lives independently. I am needing to talk to someone who can offer some advice on how I can do some things.
________________________________ From: "[email protected]" <[email protected]> To: [email protected] Sent: Sunday, April 19, 2009 10:48:07 AM Subject: tmic-digest Digest V2009 #291 -----Inline Message Follows----- tmic-digest Digest Volume 2009 : Issue 291 Today's Topics: Re: [TMIC] leg and foot comfort in b [ "Janice" <[email protected]> ] Re: [TMIC] leg and foot comfort in b [ "Janice" <[email protected]> ] -----Inline Message Follows----- I am soooo fortunate that I don't have the skin sensitivity that so many of you talk about. If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice ----- Original Message ----- From: [email protected] To: [email protected] Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time???? It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -----Original Message----- From: Janice <[email protected]> To: [email protected]; [email protected] Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice ----- Original Message ----- From: [email protected] To: [email protected] Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA ________________________________ Great deals on Dell s most popular laptops Starting at $479 ________________________________ Why pay full price? Check out this month's deals on the new AOL Shopping. -----Inline Message Follows----- Just thought I'd let you know that I am completely opposite. I can not sleep on my back. I really spasm around my middle section trying to get in that position and trying to get back up is a nitemare. I stick to sleeping on my side with a pillow between my legs to lessen spasms. Also take baclofen for spasms - helps a lot. I also have developed a thing of needing to have air movement when I go to bed. I have the ceiling fan going on no matter what the room temperature is. I just need air movement. This has really been an adventure/nitemare. Love the support of family and friends - and other TM'ers! ----- Original Message ----- From: Gillian Clark To: TM list Sent: Thursday, April 16, 2009 10:04 PM Subject: Re: [TMIC] leg and foot comfort in bed It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I couldn't move at all from that position, I can now at least move my legs into a more comfy position. I can't sleep with them bent up though Barb, that causes huge spasms. Everything hurts, no matter what but it's trying to minimize the pain is the answer isn't it? I know that when you are new to this crap it's so hard to realise the things that you suddenly have to pay attention to. Not only what you wear but where you are walking, avoiding anything that will brush on you. Shopping is a nightmare when someone brushes past etc. Since I was born being unconventional a lot of things came easily for me. If you were not born that way, it's time to change and not give an obese rodent's derriere what anyone else thinks. Find what works for you and don't worry about what the "normal" people are doing. I think I've just about got my life into a reasonable degree of comfort but sometimes it just changes again. hugs all Gilly ----- Original Message ----- From: [email protected] To: [email protected] Sent: Thursday, April 16, 2009 2:50 PM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time???? It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A -----Original Message----- From: Janice <[email protected]> To: [email protected]; [email protected] Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice ----- Original Message ----- From: [email protected] To: [email protected] Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time. It started as sensitivity and is so often PAIN. I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton. In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey. I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs. Blankets are much worse, so you need to get the most comfortable sheet you can near your skin. If you have any "old" pajama bottoms, those are also some of the most comfortable, or I wear the short ones. I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them. I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA ________________________________ Great deals on Dell s most popular laptops Starting at $479 ________________________________ Why pay full price? Check out this month's deals on the new AOL Shopping.
