Amanda, I am so excited for you to be going to Johns Hopkins! They will take very good care of you and answer all of your questions! And yes, our Jim Lubin is a pretty incredible guy! Hi Jim!
A very warm welcome to the group, Amanda. I hope you'll post often. Linda - Eagle,ID ----- Original Message ----- From: Amanda Diskey<mailto:[email protected]> To: Pieter and Heather<mailto:[email protected]> ; [email protected]<mailto:[email protected]> Sent: Wednesday, April 22, 2009 3:10 PM Subject: Re: [TMIC] Amanda needs our support!! Thank you Heather! I am actually going to John Hopkins in July to see one of the neurologists in the TM center. I am very excited!! Jim Lubin is a fascinating person isn't he! ------------------------------------------------------------------------------ From: Pieter and Heather <[email protected]<mailto:[email protected]>> To: jrushton <[email protected]<mailto:[email protected]>>; Janice <[email protected]<mailto:[email protected]>>; Amanda Diskey <[email protected]<mailto:[email protected]>>; tmic <[email protected]<mailto:[email protected]>> Sent: Wednesday, April 22, 2009 11:16:32 AM Subject: Re: [TMIC] Amanda needs our support!! Amanda, Another place to get information is the TM Association website as well. Also the John Hopkins website has good information too. I go to the TMA website everyday as well. Jim Lubin our computer guru who started this site years ago is also a quad on a ventilator. I know he does not live totally independently as he has help but he does very well from all I have read. As Jeanne says, read all you can and get educated about this TM. It has played havoc with soooo many lives. Whether we are affected a lot or a little it changes us and those around us. {{Hugs}} Heather in Calgary ----- Original Message ----- From: jrushton<mailto:[email protected]> To: Janice<mailto:[email protected]> ; Amanda Diskey<mailto:[email protected]> ; tmic<mailto:[email protected]> Sent: Tuesday, April 21, 2009 7:26 PM Subject: Re: [TMIC] Amanda needs our support!! ..yes, and read all you can from everyone because there are so many similarities even tho our injuries may be totally different. Sometimes, right out of the blue you will read something that can really help you but the main thing is getting educated about this old thing that we have. We're all here for you every single day!! Jeanne -------Original Message------- From: Janice<mailto:[email protected]> Date: 4/21/2009 10:20:13 PM To: jrushton<mailto:[email protected]>; [email protected]<mailto:[email protected]>; tmic<mailto:[email protected]> Subject: Re: [TMIC] Amanda needs our support!! Amanda, you certainly have my support and prayers, but I have no ideas for you. There are others here who are quads and you will surely hear from them. Let us hear more from you on how you are doing. Janice ----- Original Message ----- From: jrushton<mailto:[email protected]> To: [email protected]<mailto:[email protected]> ; tmic<mailto:[email protected]> Sent: Tuesday, April 21, 2009 7:46 PM Subject: Re: [TMIC] Amanda needs our support!! [email protected]<mailto:[email protected]> I got it through our tmic?? -------Original Message------- From: [email protected]<mailto:[email protected]> Date: 4/21/2009 6:54:35 PM To: jrushton<mailto:[email protected]> Subject: Re: [TMIC] Amanda needs our support!! what is her email addy? ----- Original Message ----- From: jrushton<mailto:[email protected]> To: tmic<mailto:[email protected]> Sent: Tuesday, April 21, 2009 10:34 AM Subject: [TMIC] Amanda needs our support!! Hi, everyone! We have a new TMer that wrote in last week. She must have problems with the chat line because she hasn't heard from anyone but me and one other person and that is really unusual for our group!! I'll copy her note to show you that she needs us and our support!! ::)) Jeanne in Dayton Amanda's note: I was wondering if there is anyone here who is a c6 quad with very little use of their hands and no use of their legs that lives independently. I am needing to talk to someone who can offer some advice on how I can do some things.
