Janice, I sent you the 3 links from my YouTube account Here is part 1 for others who want to see again. You can get the other 2 parts by looking in my account or on the right next to this video. http://www.youtube.com/watch?v=1QFmF6Bh1gg&feature=related
Marieke Date: Sun, 26 Apr 2009 08:36:23 -0700 From: [email protected] Subject: tmic-digest Digest V2009 #358 To: [email protected] --Forwarded Message Attachment-- tmic-digest Digest Volume 2009 : Issue 358 Today's Topics: Re: [TMIC] Re: Janice--what is NMO? [ "Janice" <[email protected]> ] Re: [TMIC] let me clarify [ "Janice" <[email protected]> ] --Forwarded Message Attachment-- Date: Sat, 25 Apr 2009 22:32:03 -0500 From: [email protected] To: [email protected]; [email protected]; [email protected] Subject: Re: [TMIC] Re: Janice--what is NMO? What special were you on? When was it? What a great thing to do - this disease needs to be brought to attention, along with TM. ----- Original Message ----- From: jrushton To: Grace M. ; tmic Sent: Saturday, April 25, 2009 7:54 AM Subject: Re: [TMIC] Re: Janice--what is NMO? Gracie, Janice should watch that special you were on!! Janice, Gracie is our movie star, doncha know??? Jeanne -------Original Message------- From: Grace M. Date: 4/25/2009 8:45:27 AM To: [email protected] Subject: [TMIC] Re: Janice--what is NMO? Hello Janice, What is NMO? NMO is extremely rare, much more so than TM from other causes or Multiple Sclerosis. It's a particularly devastating neuroimmunological disease of the central nervous system. It consists of repeated attacks of LETM (Longitudinal Extensive Transverse Myelitis) and Optic Neuritis. Sixty per cent of patients will also present with brain lesions during the course of their disease, though not in a pattern consistent with MS. Within five years, fifty per cent of patients will already be permanently blind in at least one eye (Often bilaterally.) and permanently paralyzed in at least one limb (Often more.) Within that same time frame, estimates say that 33% of patients will expire during an acute attack. It's a BCell mediated disease in the presence of an autoimmune antibody called the NMO IgG (Current research is attempting to establish whether or not the antibody itself, is pathological.) Unlike TM or MS, our lesions are inordinately long (Covering three segments of cord or more.) and often present with necrosis and cavitations. Also, unlike MS patients, we do not have the option of *riding out an attack*, but need medical intervention immediately. Most neuros have not heard of it, let alone seen or treated a case, so the majority of us end up at the larger teaching and research facilities. I'm one of the lucky ones. I still walk, and can still see. Many of the members of our Advocacy Group are already chairbound, bed fast, blind, and more than a few are vented. We have also lost members since our launching in 2006. It's not a walk in the park. Mr. Siegel (President of the TMA) has been instrumental in the growth and direction of our small group of patients. Not only does he offer great insight, but gives me those much needed pep talks whenever I am overwhelmed by the seriousness of it all. He will be publishing a seperate directory for NMO patients very shortly. I will be forever indebted to him for his support and help. Hope this helps to explain. Gracie --Forwarded Message Attachment-- Date: Sat, 25 Apr 2009 22:33:31 -0500 From: [email protected] To: [email protected]; [email protected]; [email protected] Subject: Re: [TMIC] let me clarify That gives me a whole different picture of what I was thinking!!! Janice ----- Original Message ----- From: jrushton To: [email protected] ; tmic Sent: Saturday, April 25, 2009 4:05 PM Subject: Re: [TMIC] let me clarify Good thing you clarified that.........:) -------Original Message------- From: [email protected] Date: 4/25/2009 4:29:16 PM To: [email protected] Subject: [TMIC] let me clarify The pool boy is for keeping it clean, not for my entertainment! Check all of your email inboxes from anywhere on the web. Try the new Email Toolbar now! _________________________________________________________________ Experience all of the new features, and Reconnect with your life. http://go.microsoft.com/?linkid=9650730
