In my case, I got the first one in rehab when my Heparin dosage wasn't strong 
enough and I wasn't moving at all.? Other than my PT, or if I moved my legs by 
picking them up and putting them where I wanted them, or if?the nurses did 
it?to do a cath.? I kept telling the doctor/Physiatrist and nurses that my leg 
was swelling and they didn't worry about it since I had no pain.? Well, I had 
no feeling either, duh!? I would bring it to their attention for 3 days 
straight and ask for help with it, and it took till the 3rd day that they 
finally took it serious and decided to have an ultrasound, based on 
measurements they took.? The results were a clot from behind knee up to the 
groin.? I had to go on Coumadin (blood?thinner)?then and remained on Coumadin 
for 6 months.? They said that the Coumadin does not dissolve the clot, it only 
thins the blood to make it less sticky, which keeps it from getting larger, and 
then also allows the blood to flow through the compromised vein.? 

After a little more than a?year from the first one I was doing pretty well, so 
we decided to take a vacation to Hawaii, and during that trip I got the second 
one.? I wasn't told to move my leg around a lot, but I sure learned the hard 
way.? We were on a sardine special and I got up and tried to walk around a 
little, but it was so closed in and hard to move just to get to the bathroom 
that it was all I could do, and that was almost impossible.? From California 
it's a 5 hr flight.? I moved my legs a bit, but no where near as much as I 
would have if I'd have known and I am so careful now.? I don't sleep and I am 
constantly moving my legs, standing when and where I can, walking to the 
furthest bathroom, etc. when we fly.? I also book connecting flights instead of 
non-stops, although, since we've moved,?from Sacramento you cannot get a 
non-stop to very many places.? It takes longer, but safer.

I am now on Coumadin for lifetime to avoid any further clots.? There is a 
filter you can have placed in the groin, but there are side effects to that, 
one being further clots.? So, my doctor didn't advise it.? Now I have to be 
careful not to fall and have to monitor my blood all the time, and watch my 
diet to keep my blood thinned to a specific range.? It's a real hassle, but 
don't have a choice.? At this point the docs say that I am now prone to clots, 
fun eh?






-----Original Message-----
From: marieke dufresne <[email protected]>
To: [email protected]
Sent: Fri, 1 May 2009 6:37 am
Subject: [TMIC] RE: tmic-digest Digest V2009 #373


RE: DVT, are Deep Vein Thrombosis. 

Basically, CLOTS in the vein that block it and can also break away and travel 
up in your blood stream. Very dangerous as it can go to your lungs or heart or 
brain and this can kill you. When you get DVT they put you on blood thinners to 
get rid of them and then usually you have to take another type to decrease the 
chance of getting more. People who do not move around much/are paralyzed tend 
to get them. It is important to try to move around as much as possible. If you 
can flex your ankle do it every hour to keep the blood moving so that it is not 
in stasis. You can also wear TED stockings during the day, these help as well. 
Keeping your feet elevated too. You'll know if you have one, there will be 
pain, redness, swelling in the area it is situated in. You may also see a large 
bruise. 
People who fly long distances and don't get up to walk around are also prone to 
getting one.

Marieke RN
TM @T1 since March 2004



--Forwarded Message Attachment--
Date: Thu, 30 Apr 2009 21:07:25 -0500
From: [email protected]
To: [email protected]; [email protected]; [email protected]
Subject: Re: [TMIC] wow, you work too hard Trudy


Barbara,

Your situation seems to be the closest to my situation that I have read yet.? I 
am referring to your paragraph 2.??? Also, use

baclofen (2 at dinner, 1 at 8:00pm) and have no problem sleeping too.?? What 
would we do without really good husbands!?!.

?

You mentioned DVT's in your legs.?? What are those??? Are they painful?? I have 
never heard of that.??????? Janice


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