IT FEELS AS THOUGH I HAVE TIGHT STIRUPS ON MY FEET. I usually tell people that my feet feel like there is 100 rubber bands times a 100. As I continue to do my PT, the rubber bands are popping every day. lol Now it's more like 100 x 50 rubber bands, so maybe half better. May all of US have LESS pain today, Todd in CC, TX
--- On Fri, 6/12/09, Patricia Cooley <[email protected]> wrote: From: Patricia Cooley <[email protected]> Subject: RE: [TMIC] To: "'Janice'" <[email protected]>, "'transverse myelitis'" <[email protected]> Date: Friday, June 12, 2009, 8:51 AM JANICE: I CAME DOWN WITH TM LAST JUNE, SO I DON’T HAVE THE EXPERIENCE A LOT OF YOU DO. I HAVE FOUND THAT I AM ALWAYS COLD. LAST SUMMER WHEN WE HAD A HEAT WAVE AND HAD THE AIR ON, EVEN THOUGH WE DIDN’T KEEP THE HOUSE VERY COLD, I ALWAYS HAD TO HAVE A SWEATER ON. THE HEAT DIDN’T SEEM TO BOTHER ME AS IT HAD IN THE PAST. I AM STILL ALWAYS COLD. AS FAR AS BANDING IS CONCERNED, IT IS MY FEET THAT SEEM TO BOTHER ME THE MOST. I HAVE A REAL TIGHT PULLING FEELING IN MY ANKLES AND IN THE ARCHES OF MY FEET. IT FEELS AS THOUGH I HAVE TIGHT STIRUPS ON MY FEET. I ASSUME THAT IS BANDING. THIS IS A MEAN DISEASE, BUT I FEEL THAT I HAVE BEEN VERY LUCKY I DON’T HAVE THE PAIN THAT SO MANY OF US HAVE. I DO GET SHARP STABBING PAINS IN MY LEGS AND RIGHT BUTTOCK AT TIMES, BUT SO FAR NOTHING I CAN’T HANDLE. TAKE CARE AND BLESSINGS ON ALL OF US --------------- TIAD PATTI - WISCONSIN From: Janice [mailto:[email protected]] Sent: Thursday, June 11, 2009 8:41 PM To: transverse myelitis Subject: [TMIC] This is Janice, I have 2 questions: 1. With hot weather coming, do any of you have a problem with all of a sudden being really hot? I know some of you had a problem with the cold last winter, but does your body change in summer and you get hit with being hot instead of cold? I really have a problem with heat - especially with humidity. I get hot, then weak. Not good. 2. Several of you have mentioned the tight "band" around your body. I am not sure this band is in the same place for everyone. Also, has there been any change in the band with those of you who have had TM for a long time?
