Hi
TM @ T4-5 I have the banding, at the bra line, 3-4" thick and on the right side of my torso. I sometimes get the banding in my legs, and like others, my feet, especially the right one have an "elastic" around them. Lyrica, 150 mg 3x a day has helped with the banding. Over exertion, stress and fatigue will bring it back with a vengeance. My legs do not like the cold, and are usually always cold. We don't really get hot up here, except for maybe 2 days a year (lol) so the heat thing is hard to say. I don't do well with a hot bath. Fatigue is huge, most of the time, and the pain is a killer. If it is not the banding, it is the ache in my legs. Luckily when it gets too bad, my DR lets me go to emergency for a shot of Demerol. Then I sleep for the day, and am good to go again for a month or two. I find that I "sweat" easily, and am hot in the upper body. Not bad - being "hot" and 46! Lol Janet From: Janice [mailto:[email protected]] Sent: June 11, 2009 6:41 PM To: transverse myelitis Subject: [TMIC] This is Janice, I have 2 questions: 1. With hot weather coming, do any of you have a problem with all of a sudden being really hot? I know some of you had a problem with the cold last winter, but does your body change in summer and you get hit with being hot instead of cold? I really have a problem with heat - especially with humidity. I get hot, then weak. Not good. 2. Several of you have mentioned the tight "band" around your body. I am not sure this band is in the same place for everyone. Also, has there been any change in the band with those of you who have had TM for a long time?
