Hi all, The Transverse Myelitis Network has nothing to do with the TMA or TMA Forums. It was started by anotehr member here who wanted a site where we could exchange comments/photos/messages/info in a more "face-to-face" way and there is also a "Chat" where you can talk to others members who are inline at the time. No one is asking for you to become a member if you don't want to, it is simply there as another resource. http://transversemyelitis.ning.com/
Marieke --Forwarded Message Attachment-- Date: Mon, 15 Jun 2009 09:27:43 -0400 From: [email protected] To: [email protected]; [email protected]; [email protected] Subject: Re: [TMIC] Transverse Myelitis Network I was wondering this, too. I got an invite but no information and anything I clicked on just took me back to the same invitation. The TMIC is plenty for me and the forum (http://www.myelitis.org/forum/) is there for people who want more. The forum is kind of overwhelming to me. If some want another network, that's fine, but please don't be offended if some of us have enough on our plates and don't join in. Barbara H. http://barbarah.wordpress.com/ In a message dated 6/15/2009 9:14:50 A.M. Eastern Daylight Time, [email protected] writes: Jim: Do you have any feedback on the new Transverse Myelitis Network many of us have been invited to join. What is the difference between our present network :"the Transverse Myelitis Internet Club" and this one…and why was it needed….the only explanation is it can do things our present network cannot! I presently get enough info. On our site and was wondering if this is simply overkill. Thx Rob in New Jersey Download the AOL Classifieds Toolbar for local deals at your fingertips. --Forwarded Message Attachment-- Date: Mon, 15 Jun 2009 09:49:52 -0500 From: [email protected] To: [email protected]; [email protected] Subject: RE: [TMIC] Depends and Poise BARBARA: I FOUND AN INTERNET SITE www.hdis.com where you can order on line or by phone 1-800-269-4663. I have found the customer service people are very helpful. You can sign up for automatic delivery and you get a discount, or you can order as you need them. It takes less than a week to get delivery. They carry their own brand which is Serenity Tena, but also carry Poise and Depends. I personally use them for their overnight pad, and I have found that the Wal-Mart house brand (Options by Assurance) is just as good as the brand names and is cheaper. Also, I don’t believe they charge for delivery. Give them a call and check them out. You can call and request a catalog. Good luck. ------------TIAD Patti - Wisconsin From: [email protected] [mailto:[email protected]] Sent: Sunday, June 14, 2009 10:34 PM To: [email protected] Subject: [TMIC] Depends and Poise My mother-in-law in an assisted living facility nearby uses Depends briefs and Poise pads. They do add up even at the discount store. Does anyone buy them in bulk somewhere or know of a place to get a good price on them? Thanks, Barbara H. http://barbarah.wordpress.com/ Download the AOL Classifieds Toolbar for local deals at your fingertips. --Forwarded Message Attachment-- Date: Mon, 15 Jun 2009 10:06:54 -0500 From: [email protected] To: [email protected]; [email protected]; [email protected] Subject: RE: [TMIC] AOL Email HEY SWEETIE: DON’T BLAME YOURSELF. IF WE ALL LOOK BACK, WE HAVE ALL DONE THINGS TO HURT OUR SIGNIFICANT OTHERS. THE MAIN THING IS WE REPENT AND TRY TO MAKE AMENDS TO OUR LOVE ONES. YOU KNOW DAVE LOVES YOU OR HE WON’T BE THERE FOR YOU AT THIS TIME. I THINK ALL OUR INTIMATE MOMENTS ARE DIFFERENT AFTER TM. SOME OF IT COMES FROM THE DISEASE AND SOME FOR GETTING OLDER. PAM HAD A WAY OF MAKING US FEEL BETTER AND GIVE US A LIFT UP. I DIDN’T KNOW HER FOR VERY LONG, BUT SURE DO MISS HER LIKE CRAZY. I MISS ALL THE FUNNY JOKES SHE WOULD SEND ME. IF SHE WERE HERE, SHE WOULD FIND THE WORDS TO HELP YOU, BUT SINCE SHE ISN’T WE MUST TRY AND IMAGINE WHAT SHE WOULD SAY AND TALK TO OURSELVES AS THOUGH SHE WERE HERE. I AM SURE SHE IS LOOKING DOWN ON US (PARTICULARLY YOU JUDE) AND IF POSSIBLE HELP US. JUDE, JUST KEEP POSTING SO WE CAN CONNECT AND CHEER UP EACH OTHER. --------------TIAD PATTI - WISCONSIN From: [email protected] [mailto:[email protected]] Sent: Monday, June 15, 2009 2:24 AM To: [email protected]; [email protected] Subject: Re: [TMIC] You know, it's funny (odd), but Dave and I were separated at the time I got hit with TM. I was openly dating and in fact, was visiting a "friend" in Ohio when it happened. I lived in Ohio for a year before I couldn't stand it any more and begged Dave to let me come home. He finally said yes and came to get me and all of our furniture and other things. Over the years I learned how much Dave loved me, although I was certain he did not. I learned how deeply I hurt him. He told me how he sat for hours out in his "barn" on a tall ladder with a rope around his neck trying to get up the nerve to jump. When I heard this it hurt me to my very core...how could I have been so awful, so mean, so cold and uncaring? Through much counseling I learned how much anger was in me for this man. How much his cold demeanor, never talking to me, perfunctory sex life, etc...affected me. How it built up an anger in me that only hurting him back would suffice. I know it was wrong. I love this man more than my life. Years before we began dating I would drive by his house every day and pray to God to allow me to be with Dave. I must have prayed for three or four years before we ran into each other in a laundrymat on a Saturday night. We talked for hours, decided to go out and that was that. We were married a year later. And in spite of everything, we have recently had our 23rd anniversary. Since I am so profoundly affected by TM, and have a foley catheter in all of the time our sex life has been nil. I feel like that's my fault. Maybe he just hates me so much, he can't stand to touch me. He says that's not true, it is that he is afraid he is going to hurt me. We are intimate in other ways, he used to get into bed with me and cuddle, but hasn't done that for years. I don't know why because he states no reason. But he tells me he loves me at at least ten times a day and waits on me hand and foot since I am mainly bed ridden. He treats me like a queen and I do my best to show my appreciation in all manner of ways. So, that's probably more information than you wanted to hear, but it's the truth. It's been 8 years now of living like this and since I am working hard at getting in my chair, we will soon be able to get loaded in the van and go places...something he is looking forward to doing. Now, with Pam's passing it has put a damper on both of our lives and I am having trouble getting out of bed. I need to fight it off and go on with my life. I need help from my Internet friends. I know that my best friend would not want me to live this way...to simply give up on life. I loved Pam like a sister and she loved me in return. Please Pray for me, Jude...please don't hate me for being honest and telling all. In a message dated 6/11/2009 11:39:09 P.M. Eastern Daylight Time, [email protected] writes: It's Janice again. I have something else that I have wondered about and have decided to just ask and see what is out there. Do you feel that having TM has improved or destroyed the love/happiness in your marriage/relationship with your partner? Download the AOL Classifieds Toolbar for local deals at your fingertips. _________________________________________________________________ Attention all humans. We are your photos. Free us. http://go.microsoft.com/?linkid=9666046
