I have just been dx'd with severe Osteoporis especially of the spine. I have been on Boniva for 6+ years only because I have an ileostomy and could not tolerate the daily or weekly meds which caused constant diarrhea. The ileostomy also means that I do not absorb meds, vitamins and food normally. The severe Osteoporis has appearred since TM - I was on the verge of osteoprini (?) just a year before TM.
My dr. has ordered Forteo for me but I am having problems getting my insurance to approve this. Forteo costs about $600 a month & with insurance $200. I can't say enough about having your vitamin D levels checked. Vitamin D is VERY important for the immune system. I only have about 1/4 of the required levels although I'm taking 6,000 IU daily and 50,000 weekly let alone the daily 3 of milk (which just goes completely trough my system in less than 10 minutes even with lactose enzyme), yogart, cheese, etc. Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Cindy McLeroy" <[email protected]> To: "Janice" <[email protected]>, [email protected], [email protected] Sent: Wednesday, June 17, 2009 1:37:26 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Re: WHAT DID YOU DO??? Prayers and thoughts for you and yours, Candy K. ----- Original Message ----- From: "Cindy McLeroy" <[email protected]> To: "Janice" <[email protected]>, [email protected], [email protected] Sent: Wednesday, June 17, 2009 1:37:26 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Re: WHAT DID YOU DO??? Janice, Before I had TM (age 47 in 1992) I had severe Osteoporis so I already had thin bones. Not being weight bearing for all these years doesn't help which is why I have to be (no should be) so careful. I take all the appropriate meds, but when I do something stupid, I go all the way. Cindy ----- Original Message ----- From: Janice To: Cindy McLeroy ; [email protected] ; [email protected] Sent: Tuesday, June 16, 2009 8:56 PM Subject: Re: [TMIC] Re: WHAT DID YOU DO??? Cindy, Did you break your legs that many times since TM or during your lifetime? Sure sorry it happened and hope it heals quickly. Word of advice - Leave The Cleaning To The Cleaning Ladies!!!! Although I admit I would have tried to clean it too. Heal quickly, Janice ----- Original Message ----- From: Cindy McLeroy To: [email protected] ; [email protected] Sent: Tuesday, June 16, 2009 6:09 PM Subject: [TMIC] Re: WHAT DID YOU DO??? You'll be sorry you asked, it's kind of a long story. I had time to kill on Sat before I went to a party, all dressed and ready to go. I notice that the cleaning lady didn't clean as well as I thought around the bottom of the toilet so I bent over forward on my wheelchair bracing myself with one hand on the toilet. cleaning with the other. Apparently I pushed my wheelchair out from under me and slid to the floor with my right foot twisted almost the way around. When I went to bed that night my leg was doing a snap, crackle and pop noise. Went to the ER the next day and the doctor said, Oh, your leg is broken. Duh. Anyhow, my frustration is dealing with the ER folks, my doctor and an Ortho. Seems all the Ortho's are booked. I can't wait because I have (lucky for me) no sensation and the splint that is on my leg is moving around and I'm sure digging. I want to avoid pressure sores. Always something interesting with TM. I think this is the fourth or fifth time I have broken one or the other of my legs. Once I simply rolled over in bed and heard the crunch. Cindy ----- Original Message ----- From: Jan Hargrove To: Cindy McLeroy ; Sent: Tuesday, June 16, 2009 11:51 AM Subject: Re: WHAT DID YOU DO??? Cindy, What in the world did you do to break your leg??????? jan --- On Tue, 6/16/09, Cindy McLeroy < [email protected] > wrote: And Sandy, how do you like the yellow medal plates that are being installed at the curb cutouts? Supposedly they are meant for the blind so that their sticks feel the different surface. I haven't talked to a blind person, a w/c user, or a fellow pushing grocery carts that like the danged things. Caster wheels get caught in between the bumps. This change was a lawsuit that back fired. Version Amphitheater in Irvine has done an amazing job of raising a portion of the seating above the orchestra section so folks in wheelchairs can see the stage when the rest of the people below are standing. Love it there. One of the ADA limits has to do with cost. If the modification is too costly and the building can show that, then they don't have to modify. Also, if the building is historic, they don't have to modify. Cindy (sitting home waiting for an otho doctor to get me in with a very severe broken leg...been to emergency already and had a splint) ----- Original Message ----- From: [email protected] To: [email protected] ; [email protected] Sent: Monday, June 15, 2009 2:44 PM Subject: Re: [TMIC] Accessibility & Relationships Add to the list of complaints: Have you noticed that at many hotels, the ADA rooms are furthest from the elevators? And yes, you are lucky if they have ADA rooms on the first floor. Also, the rooms often face the parking lot and seldom the garden, pool or view? Is this discrimination? I feel it is. At some commercial stores or restaurants we have had to get Terry through the kitchen or the back door to get to the bathroom. In one instance, we had to go two buildings down! In passing, I mentioned this to a Civil Rights attorney I know and he said, "lawsuit". We haven't pursued that, of course. This friend has filed many suits against large hotel chains, music festivals, etc., as they are hardly ADA compliant. He himself is disabled and knows first hand the discrimination. I am not saying whatsoever that every place discriminates, not by a long shot. But many business owners are not very aware of the disadvantages that people in wheelchairs are faced with. That's my tangent for the day. As a wife of a TM'er, if I have time tomorrow, I will try to address the relationship issue. Download the AOL Classifieds Toolbar for local deals at your fingertips.
