Jeanne, first of all Colby is of course in my prayers. I just can't believe she is from Dayton, your intimate little town. My goodness - so rare.
Ok you're upset that the doctors want to put her on chemo. I have been on chemo since the beginning of TM 7 years ago. The reason for this is because I also have Sjogrens/Lupus, which is what caused my TM in the first place. My immune system needs to be suppressed so that hopefully it will not attack my spine again. I have re-current TM because of my other autoimmune diseases. It is NOT unusual for the doctors to find a positive ANA when running all the tests when she first presented with symptoms. If she does not have RA,Sjogrens,Lupus or some other autoimmune disease or re-current TM I would question the chemo definitely. But if she does have one of the above, it is very important to get her on the chemo as soon as possible to avoid any relapse. How old is Colby now? I'm so glad the doctors knew to get her on steroids - I hope they gave her IV Solumedrol?? It's a great idea if the doctor will call Dr. Kerr - this sounds like it could be a complicated case. I will keep Colby and her family in my thoughts and prayers. Please keep us updated? Thanks Jeanne hugs, Linda (Eagle,ID) ----- Original Message ----- From: jrushton<mailto:[email protected]> To: tmic<mailto:[email protected]> Sent: Friday, July 17, 2009 8:05 AM Subject: [TMIC] New onset of TM - little girl Prayers, please, again for a little girl by the name of Colby from here in Dayton who is in the Children's Hospital in Spokane with the new onset of TM. They did give her the steroids and now want to put her on chemo! Mom just called me and I said to call Dr. Kerr and beg to talk to him or one of his associates and to please have her doctors do the same before they start the chemo. She will let us know what happens. Gunny, can you help with this, maybe open some doors for her and her family? Jeanne
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