Heyjude - I've only been a TM for 3 yrs and have been reading the emails for a couple of weeks deciding whether or not I want to join in.?? I've been quite surprised by some of the things I've read and applaud you even though you were slightly off point.? Maybe someone can tell me what I am missing because so far this site seems like a fraternity with way too many personal messages clogging up the email cyber waves.? Curious?? lz
-----Original Message----- From: [email protected] To: [email protected]; [email protected] Sent: Sat, Aug 1, 2009 1:05 am Subject: [TMIC] Re: [QUAD-L] 35 year anniversary Will you people whom do not have TM along with being? "quads"? please create a site of your own and use it.? You are breaking into a site for people who have a disease called Transverse Myelitis, and unless you have it, I feel you ought not be here because you will never understand the things we talk about.? Some of the topics you will be able to relate to, simply because you are paralyzed or have a similar disability, but you ought to create a site for Quads all of your own. ? I am sorry for saying these things.? I wish I didn't feel the way I do.? Those of you with Transverse Myelitis, stay...the rest of you, please begin your own web site and do not clutter up the TM Site.? It very well may confuse a person with new TM who needs a place to go to find solace, to vent their anger, to find the exact same people who have the same problems as they do.? ? This a TRANSVERSE MYELITIS site...not simply for paraplegics, quadriplegics, or people with diseases similar to ours.? Unless you have Transverse Myelitis, you do not belong here. ? I am sorry that I feel this way.? I don't even know why I feel so strongly about this.? It seems that I am the only person on our site who feels this way since no once has written in to back me up. ? Regardless, I feel that you ought to have your own site and that means that it is time for you to create your own site, and move on.;? Please respect our site. ? Thank you quads, I love you, Jude...........Wait a minute.? I just went back to see where you had addressed your email and it is addressed to a site that is not this one.? I wonder why all of your mail is being sent to out site.?? ? Please accept my apology for all of the things I have said.? I am so sorry.? Why didn't one of you come on board to correct me? ? With my deepest regrets, Jude, (big mouth) In a message dated 7/28/2009 3:53:14 P.M. Eastern Daylight Time, [email protected] writes: Hey Dana quadriplegics on 35 yrs. I'm only at 10yrs July 31. I, too, have been pretty healthy.( I'm a c6-7 quad.?I can't stay still for long plus I do get in a manual as often as possible mainly for excercise and to keep my weight down. I went from 205 to 125 now holding at 130. I've broken my right leg 3 times ( shoot almost can't keep count) LOL Mainly from trying things, but if you don't try, how will you know if you can, right.) For those of you who don't know me. By the way I'm about to be a grandma, my daughter is 7 mos and its a girl (woohoo) I'm so excited. ? Oh Dana by the way What I'm worried the most about the?medicare/medicaid?is they (government)want to stop in-home care. One thing I have heard is The Governor of Texas is really looking into the healthcare, like he did the stimulus thing. He didn't take all the money only enough to help the unemployment and welfare n few other things. What I don't understand with the Healthcare is with its hard enough with getting things with medicare/ medicaid?I hope and pray they don't screw it up worse. ? Regina Life's greatest accomplishments are those that at first seem impossible and No one can know what they can do until they try. --- On Mon, 7/27/09, [email protected] <[email protected]> wrote: From: [email protected] <[email protected]> Subject: Re: [QUAD-L] 35 year anniversary To: [email protected] Date: Monday, July 27, 2009, 10:25 AM congrats on being a tuff ol' goat? DAANO.? I've had only one close call with a uti -? I've been unusually healthy since 5-24-1967.? yupper 42 years.? (I had to think for a minute of the exact date - that's gotta tell you something )? looks like this sci stuff isn't nearly as deadly as one might think. azdave ? Young people talk of the future because they have no past, while old people talk of the past because they have no future. Dave & Patty's Grandkids ? In a message dated 7/27/2009 7:28:02 A.M. US Mountain Standard Time, [email protected] writes: I can't believe I made it to my 35 th year anniversary.? My parents were told after each hospitalization I might not make.? It seems I was strong enough to defeat their predictions even though I appeared to be weak at the time.? I was given a tracheostomy after each of my surgeries, but it was removed before I came home.? I had so many long hospitalizations trying to get off the ventilator and over pneumonia.? I was given another tracheostomy during a pneumonia in 88, which they changed to a trach button before I left the hospital.??It has? kept me out of the hospital except for a UTI that got into my bloodstream causing a coma for 13 days.? I had a? pneumonia last year.? The trach buttonallows me to get over the bronchitis at home.? I didn't want it, but it turned out to be a good thing for me and not very noticeable.? It is mostly capped, unless I have a lot allergies or congestion and might need suctioned as needed.? It is easy for anyone to learn how to do.? I am quite healthy almost all of the time.? I love to enjoy life going to concerts, which is one of my favorite things to do.? Sorry this has been such a lengthy post. ? I have forgotten, who has the longest survivor that we know of.? They had saved that information, but have lost when this computer was reformatted and my brother?thought he had saved. ? I haven't got a lot of posts this summer, and I'm sure everybody is busy.? Just wanted to say I miss those that I have not heard from. ? What does everybody think about the new health-care bill as nobody has mentioned.? I know that is a political issue, but very important for our ability to survive and get what we need.? There has been talk about taking away from Medicare.? Medicaid is also having problems with reduced state revenue for problems.? Kansas has mentioned there will be some reductions with populations such as ours, but I don't know where it will be targeted.? PCA hourly pay is very low and hard to find people that want to work with no increases at all for a number of years.? ? Just wondering! ? ? ? ? . ? ? ? ?
