I've been taking glucosamine for more than ten years now and yes, it has 
lessened the pain in most of my joints........  and when I stop taking it for a 
few dayze, the pain comes back. 
Hmmmmmm.

Regards to one and all from Elvis week in Memphis,    BobbyJim      
  From: [email protected]         To: [email protected] ; [email protected]   
  Sent: Thursday, August 13, 2009 7:51 PM
  Subject: Re: [TMIC] Need some help please


  I did forget to add something.  Since I saw my PCP and he talked about the 
bone on bone thing with my knee I added Glucosomin to my daily med routine and 
have had less pain in my knees.  Don't know if this would work for everyone, 
but it also makes my hip hurt less.  It takes a bit to get working, so give it 
a chance if you go for it.

  I am also working on losing some weight, hopefully, a good amount of weight, 
as I know this will be easier on me now and in the future.  It's something that 
I've needed to do, tried off and on, but now it's going to be a necessity.  I 
can't wait for the doc to tell me tomorrow how I need to do it!  Duh!  Yikes!!!

  Hugs, Barbara A


  -----Original Message-----
  From: L T CHERPESKI <[email protected]>
  To: [email protected]; [email protected]
  Sent: Thu, Aug 13, 2009 12:48 pm
  Subject: Re: [TMIC] Need some help please


  Hi Barbara, I know a lot of people who have had very successful knee 
replacement, and regret going through all that pain and waiting so long to have 
it done.  I am going to look into having the injections and definitely aqua 
therapy.  I've heard nothing but good things about aqua therapy - even for 
knees that are bone on bone, building up certain muscles to help relieve some 
of the weight bearing on the knees.  And definitely I am going for a second 
opinion, armed with all my research data.

  Thanks for the help,
  Linda
    ----- Original Message ----- 
    From: [email protected] 
    To: [email protected] ; [email protected] 
    Sent: Wednesday, August 12, 2009 12:03 AM
    Subject: Re: [TMIC] Need some help please


    I have a friend who had a very successful double knee replacement, but 
before they ever got to that point, they did cortisone injections and I think 
maybe physical therapy, so I think those would give some relief at least for a 
while. I would think losing weight could only help, and I would guess water 
therapy would be good. 

    I would seek another opinion and ask straight up, "If I can't do surgery, 
what are my other options; what can I do?"

    Barbara H.
    http:barbarah.wordpress.com

    In a message dated 8/11/2009 11:41:20 P.M. Eastern Daylight Time, 
[email protected] writes:
      Hi everybody,

      I'm hoping you guys can help point me in the right direction.  There are 
so many of us on the TM site there's just got to be someone who knows somebody 
with the same or similar dilemma. 

      Most of you know that I've had Sjogrens for 20+ years (unfortunately, 
progressive and aggressive) and 7 yrs ago TM came into my life.  I am on heavy 
chemo meds (Imuran and Rituxan infusions) to suppress my immune system to keep 
it from attacking my body.  Last Sept I had a "minor" surgery to repair a torn 
meniscus in my knee, and my body went into the longest, hardest relapse I've 
ever had.  I'm just now getting my arms and hands "back" - I think this is as 
much as I'll get this time.  Almost everything else has gradually come back.  
My one huge problem is that my KNEES took the biggest hit - my doctors said it 
was because they were the weakest part of my body at the time.  I have infected 
knees (right one to the bone) and am walking (trying) on bone on bone knees.  
They both need to be replaced.  And, I have TM, so already my walking is not 
that pretty.

      I was sent out of state to a surgeon who does a special knee replacement 
surgery that is less invasive.  Long trip, big disappointment.  He will NOT do 
surgery on me either because of the "aftermath"  - said it would be like doing 
brain surgery due to my autoimmune diseases.  Well that's fine - I have always 
wanted to do anything but the surgery, but was given no OTHER choices.

      And, I am still being given NO options.  So I've done some of my own 
research.  What about physical therapy to get my thigh and quad muscles built 
up so they can take some of the load off my knee joints? (I'm a fairly small 
person so we're not talking about losing 50 lbs and that would make things all 
better)  Water therapy?  I'm not quite sure how to get these muscles built up 
when my knees hurt so bad I can hardly bend them, but there has to be a way.  
My doctors have kind of given up on me, which at first shocked me, now I'm just 
really mad.

      Any ideas would be much appreciated.

      Thanks guys,

      Linda   

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