I am hoping scientists or chemists will come up with something that will cool
down all of our nerve pain.
Janice
From: kevin weilacher
Sent: Wednesday, December 23, 2009 6:06 AM
To: Janice Nichols ; [email protected]
Subject: Re: [TMIC] Nerve Pain
Janice,
Who would have ever thought that nerve pain or sensations would feel like that
or hurt so bad.
I remember as a kid having road rash from a few different bicycle crashes and I
remember the nerve sensations from that, but that pain doesn't even hold a
candle to what I'm experiencing now.
And isn't it odd how each of us is affected differently in some ways, as you
say that the weather doesn't bother you. This cold weather is really ramping up
the sensations and the stiffness in my legs but then again, I also will have
more pain on the following day of overdoing activities.
This tailbone sensation really makes me crazy because besides the burning, at
times it feels like I have a pair of rolled up socks jammed (excuse me for
this) into the top of my butt crack and it makes it uncomfortable to walk or
sit or anything.
It's interesting too, you mention about the spasms. I have one muscle in
particular that goes crazy and it does so more when I am laying flat although
it does it at other times too, even when I am standing. The muscle runs from my
left glute down through the back of my left leg to my knee. At times that
muscle feels like it's running a marathon all by itself. I can lay my fingers
on my skin and feel the muscle going to town. There are times that it does it
so much, that the day afterward, that muscle is sore from the spasms.
Crazy stuff, huh..?
Good Luck with yourself also.....
Kevin Weilacher
N.E. Ohio (Canton)
--------------------------------------------------------------------------------
From: Janice Nichols <[email protected]>
To: kevin weilacher <[email protected]>; [email protected]
Sent: Tue, December 22, 2009 10:20:37 PM
Subject: Re: [TMIC] Nerve Pain
Kevin,
You have described my sensations closer than anyone else. The weather does not
seem to bother me. What is much worse is over doing activities on a day I feel
really good and then paying for it the next day. My tailbone also feels much
like yours. Whats up with that? I can not lay flat on my back with my
legs flat-it
causes spasms. Well, I am a mess and my husband has decided that we are
never going to figure out my body, so we are just going to cope with it. Good
luck
with your body!
Janice
From: kevin weilacher
Sent: Sunday, December 20, 2009 8:17 AM
To: Janice Nichols ; [email protected]
Subject: Re: [TMIC] Nerve Pain
Janice,
My nerve pain runs from where my lesion is (L4,L5 and S1 which is right at the
tailbone) all the way through my butt and down through the back of both of my
legs down to my knees. The pain in the tailbone area is a real bad burning
sensation and then when it gets down to the backs of my legs, it feels like my
skin is literally being ripped apart. There are times when I will feel the
backs of my legs with my fingers, just to check to make sure there isn't an
open wound there because the sensation is so strong.
The colder the weather also makes the sensation stronger and also in the summer
if I have been outside doing any kind of physical activity.
There are times that the sensations are so bad that I can't even lay on my back
in bed because I can't stand having the backs of my legs or my butt touching
the sheets and most times it is hard just to sit in a chair for any longer than
a few minutes at a time and when I am sitting I don't sit flat on my butt, I
have to sit cocked over to one side or the other.
Does it get bad enough to get me down..? Short answer....yes.
Kevin Weilacher
N.E. Ohio (Canton)
--------------------------------------------------------------------------------
From: Janice Nichols <[email protected]>
To: [email protected]
Sent: Sat, December 19, 2009 11:14:35 PM
Subject: [TMIC]
Okay, I have another question. When we talk about nerve pain, are we all
talking about from top of back thighs down to bottom of calves? Or do you
all
have some other areas that are affected? Does it ever get bad enough that it
makes you all down? Mine will do that-like a knife tearing down the leg.
I just
wondered if we all felt the same thing in the same areas. Janice
