Barbara you helped restore some of my sanity. Do you still have residual problems? My same neuro suggested that it have been auto immunine disorder. I didn't know if he was suggesting a virus and when I asked I think that he might have thought that I just don't have enough background knowledge to understand. I know that I have been checked for a lot of pathogens and each time it was always negative. I did get eatten up by mosqiutoes in the deep woods of a national forrest 2 weeks before the tm experience set in. Sent from my Verizon Wireless BlackBerry
-----Original Message----- From: Barbara Alma <[email protected]> Date: Sun, 14 Feb 2010 00:39:33 To: <[email protected]>; <[email protected]> Subject: Re: [TMIC] TM and Pilates Hi Randy and all TMIC, I am another one who was originally told that I had TM and am now being told that I don't, and that's by the same doctor and another as well. I've never been talked to about MS though. I had only one attack, was paralyzed from waist to toes within 15 minutes, at lesion T8-10. I even went to 2 different hospitals, as I wanted a second opinion, both with a TM diagnosis. After about 3 yrs I was told by my first Neuro, who became my treating Neuro that I didn't have TM. He didn't know what caused the paralysis and no other information as to why. Not a spinal infarction or stroke, or anything else. I had trouble with my disability claim and he was the cause so I changed Neuro's a few of years later and she had MRI's done and told me the same thing. MRI's have come a long way and the lesion is not there any longer and they can't see any cause, like a bleed or anything. She looked for evidence of a bleed because she wanted to rule out the possibility of it happening again and couldn't find it. So guys, since I've had 2 Neuro's both tell me that I don't have TM, I really don't care. I'm sticking with it, and you are just stuck with me. I'm happy here, I get the support that I need, I give it when I can, and I'm not going anywhere. I really don't know what caused my problems, and I really don't care at this point. It is what it is. I've had this crap for over 10 years and it's not going away. I had TM symptoms and that's where I started, so I'm sticking with it. Hugs, Barbara A in Auburn CA -----Original Message----- From: [email protected] To: Grace M. <[email protected]> Cc: Janice Nichols <[email protected]>; [email protected] Sent: Sat, Feb 13, 2010 1:18 pm Subject: Re: [TMIC] TM and Pilates Janice its ok. I've actually been wondering if I should stay. I feel very wkward these days. I've been told more than once that I had all the "textbook" igns for ms and I did loose my left foot followed by my right leg then my ladder was told I had tm and went through the most unbelievable facial pain. ad several doc all with different ideas and one that got me on my feet and nother that got me in pt and walking again I've been hospitalized 4 times and ow suddenly I am told that I don't have ms and show no signs of tm. I pray to od nothing comes back. I spent an entire summer pushing myself on a tread mill rying to rebuild my strenght but that was after the years of trying to cross my egs and do odd excercises on the bed floor and chair that the pt taught me. It ure has been a mentally brain warping experience. Tx grace for calling me fam. his is a great group of people and have helped me get through a lot of hallenges as well as put up with my venting from time to time. I think we all ave to vent. -----Original Message------ rom: Grace M. o: [email protected] c: Janice Nichols c: [email protected] ubject: Re: [TMIC] TM and Pilates ent: Feb 13, 2010 2:26 PM Randy, ou're like family here at the site and have a lot of good input to offer. I hink that you and I came around the same time. anice, we don't have to currently be ill in order to participate here. ALL are elcome. It's not an exclusive club. espectfully, race Sent from my Verizon Wireless BlackBerry
