Tell you what, this has been one really enlightening morning just reading all of these emails. You can tell that you have really delved into your diseases trying to figure them out -which I would think would be quite difficult considering all of the underlying and overlying diseases that can exist also. My hat is off to you all! Janice
From: Grace M. Sent: Sunday, February 14, 2010 10:24 AM To: Barbara Alma ; [email protected] Subject: [TMIC] Re: TM/Hi Barbara, I'm another one. Hi Barbara, I'm another one. My relapsing LETM (Longitudinal Extensive Transverse Myelitis) is caused by NMO, which is a neuroimmunological inflammatory disease. Although I have experienced LETM many times, my official diagnosis is NMO. For me, TM is a symptom of my underlying disease process. Our member Linda C., experiences relapsing TM as a result of her Sjogren's. Like me, she is on a a heavy hitter chemo. (Rituxan---chemotherapeutic agent, a monoclonal antibody typically reserved for Non Hodgkin's Lymphoma, and severe RA patients.) TM can be caused, or be present in several different disorders. NMO, Lupus, Sjogren's, ADEM, MS, and others. And of course, it can also be idiopathic. Gracie (NMO+ since 2005)
