Thanks Catherine, I needed that. May I ask, does your pain come when it's very humid?
Date: Thu, 1 Apr 2010 01:24:16 -0700 From: [email protected] Subject: Re: [TMIC] Still in the Hospital To: [email protected]; [email protected] Jeron, You are in my thoughts and prayers. I am in Massachusetts with all the flooding and I too, am in terrible pain!! God Bless You, Feel better soon, Catherine Life is short, Break the rules sometimes, Forgive quickly, Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile ________________________________ From: Janice Nichols <[email protected]> To: j ra <[email protected]>; [email protected]; [email protected]; Transverse Myelytis <[email protected]> Sent: Wed, March 31, 2010 5:12:53 PM Subject: Re: [TMIC] Still in the Hospital Weather You got it! Janice From: j ra Sent: Wednesday, March 31, 2010 12:51 PM To: [email protected] ; [email protected] ; [email protected] ; Transverse Myelytis Subject: [TMIC] Still in the Hospital Hey guys, It's 10 days now and I'm still stuck in an ICU. It's confirmed that it is recurrent TM. Right now they are just treating pain and trying to manage symptoms. So say a prayer for me, or keep me in your thouhgts. Yours, Jeron ________________________________ From: [email protected] To: [email protected]; [email protected]; [email protected] Subject: Re: [TMIC] Weather Date: Wed, 31 Mar 2010 11:44:40 -0500 I am used to definite changes of seasons, but I could really be tempted by a place that I would find "comfortable" physically. Hope you get there soon. Janice From: kevin weilacher Sent: Wednesday, March 31, 2010 11:36 AM To: Janice Nichols ; Robert Pall ; [email protected] Subject: Re: [TMIC] Weather Janice, To me, it is an ideal place and as I said, I WILL be moving there someday. It is the desert, so you have to like the desert, which means that there isn't as much greenery for those that are used to it and of course the change of seasons isn't as evident. If you can get past those kinds of things...it's a pretty great place....my opinion of course.. Kevin Weilacher N.E. Ohio (Canton) ________________________________ From: Janice Nichols <[email protected]> To: kevin weilacher <[email protected]>; Robert Pall <[email protected]>; [email protected] Sent: Wed, March 31, 2010 10:12:59 AM Subject: Re: [TMIC] Weather Kevin, Alamogordo sounds wonderful! I didn't know they had places like that. Janice From: kevin weilacher Sent: Tuesday, March 30, 2010 9:42 AM To: Robert Pall ; [email protected] Subject: Re: [TMIC] Weather One other thing too, I notice that you are in NJ Rob, and as you can see I'm in Ohio. Many of us are in the cold part of the country and have these issues. I am, as soon as I possibly can, going to move back to the southwest. I lived in a town called Alamogordo New Mexico back in the 80's and it had the most ideal weather of anywhere I've ever seen and I've lived in a lot of places after spending 20 years in the Air Force. Average annual high temp of 76 degrees, average annual low temp of 47 degrees, 11 inches total precipitation per year and 4 inches of snow per year. Humidity averages only about 50% year around and also about 80% days of sunshine a year. The elevation is about 4,000 feet and within a 20 minute drive you can go into the mountains and be over 9,000 feet and have all the snow you want and it is 20 degrees cooler. Plus, I love southwest style cooking..... As much as Ohio and PA are "home" to me because this is the part of the country where I was born and raised and where my family is, they can keep it. I'm tired of cold, snow and all the rest of the mess that goes with it. Kevin Weilacher N.E. Ohio (Canton) ________________________________ From: Robert Pall <[email protected]> To: kevin weilacher <[email protected]> Sent: Tue, March 30, 2010 9:08:11 AM Subject: RE: [TMIC] Weather Thanks Kevin...just one more lousy side effect of TM! Rob ________________________________ From: kevin weilacher [mailto:[email protected]] Sent: Tuesday, March 30, 2010 10:06 AM To: Robert Pall; Transverse Myelytis Subject: Re: [TMIC] Weather Hi Rob and all, Yes, I think all of us TMr's should band together to become meteorologists. I think we could probably be better weather predictors than the weather folks on TV. What I have found now in the close to two years of TM, in the summertime I can tell even the slightest change in humidity and barometric pressure. In other words, if there is a storm brewing, my legs will let me know because they ache like no tomorrow. The humidity drives me nuts because now with TM the only part of me that sweats is my head and it sweats profusely, probably to make up for the rest of my body not sweating anymore. In the winter with the cold, the pain level multiplies many times. I can hardly stand to go outside for more than a few minutes and a ride in the car, even with the heater on, is sometimes almost unbearable. Also the cold makes my legs stiffen up like boards. A short walk to the end of the driveway to get the mail and then back to the house and I'll have a hard time stepping up the two small steps into the house. My knees will not want to bend, I'll literally have to grab ahold of the door frame and pull myself up into the house. Oh, and by the way, I use a cane to get around. I have pretty bad foot drop on my left foot but wear a brace for that. Now, right now during this time of the year I'm not noticing too many issues other than some of the normal pain and also in the Fall when the weather is decent, I don't have too many problems then either, other than the "normal" ones. So, I guess to answer your question, as far as I'm concerned, the weather does raise some problems with TM. Best to you, Kevin Weilacher N.E. Ohio (Canton) ________________________________ From: Robert Pall <[email protected]> To: Transverse Myelytis <[email protected]> Sent: Tue, March 30, 2010 8:29:31 AM Subject: [TMIC] Weather We are getting a huge amount of rain in the Tri-State area which started yesterday and is expected to end tomorrow. My question is one we have discussed numerous times …but if you will indulge me with your responses one more time. For me high humidity and rain seem to have a tremendous impact on how I feel. The banding in my legs feels twice as bad as normal…as do the numbness and pins and needles. Considering we have members in this group spread out throughout the country (other countries as well) I am interested in how weather and what type of weather (if any) makes TM worse for you. Rob in New Jersey ________________________________ Hotmail: Trusted email with Microsoft’s powerful SPAM protection. 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